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Comments for Save Baby Gavin

Save Baby Gavin

Last Build Date: Sat, 18 Feb 2017 13:12:53 +0000


Comment on About Peritoneal Dialysis by Periton

Sat, 18 Feb 2017 13:12:53 +0000

Hi Laura , I had exactly the same stuation . Twin to twin sendrom. Unfortunately lost one of the baby and another one had luck of oxygen so it effected both kidney and the brain . My baby on PD since 3 months after birth . It has been years but still hope to get in touch with you if you like

Comment on About Peritoneal Dialysis by Shelly

Tue, 02 Aug 2016 17:05:53 +0000

Hi I read your story about your baby. We are going through the exact same thing. 1 multicystic kidney and the other one absent. Can you please tell me what the outcome was with your son. I know it was a long time ago. I hope you still come back to this site. I'm 22 weeks pregnant and so worried. My email address is. I would be so grateful if you could let me know what happened and if he did survive. Thank you

Comment on About Peritoneal Dialysis by mamli

Thu, 20 Dec 2012 05:14:34 +0000

hi just wondering how is ur son my nephew is facing same problem

Comment on Happy 4th Birthday Gavin! by Mary comeaux

Mon, 03 Dec 2012 19:45:10 +0000

Is Gavin still doing well. My nephew James Crow is being sent home on this type of dialysis. He is 5 months old. He had his right kidney removed and the left is not functioning. Your website is an inspiration as our family begins this process.

Comment on Jill's Journal by Rose Karlan

Tue, 27 Nov 2012 18:32:10 +0000

I am reaching out because October 27 2012 my son, Harrison, was born w kidney failure of unknown cause and was started on peritoneal dialysis. We are currently still in the nicu now approaching 1 month. I would love to hear about your journey and hear how Gavin is doing now. Please contact me.

Comment on Guestbook by Jodie Waselick

Fri, 23 Mar 2012 04:54:26 +0000

Hi, Your blog touched my heart in so many ways. It was like reading about my own experiences! Our 16 month old son is presently on PD, awaiting a transplant. He also was born with ESRD. But like your Gavin, my son is a warrior! He has the most incredible personality and already is the strongest person I know. From my twenty week ultrasound on, life has been a roller coaster! I can't even explain to you how good it felt to read about someone else living with this! I hope Gavin continures to do well and your family stays happy, healthy and bug free!

Comment on About Peritoneal Dialysis by Yaneth

Mon, 27 Feb 2012 06:34:06 +0000

Hi I have a 7 month old baby boy whos on Dialysis since he was 4 months old, sad story happen to us. My question for you, my baby when he is on his 12 hrs dialysis and his nigth feeds he attempt to vomit alot,was your baby us too do that to, or any idea why he vomits? I have ask the Dr. but they all give diffrent answer that does'nt make any sence for me

Comment on About Peritoneal Dialysis by crystal kelly

Tue, 20 Dec 2011 16:00:39 +0000

My Son Gage is on CCPD he has been on it since he was three days old and now he is almost three months old. He had a bladder outlet obstruction when he was in utero which damaged his kidneys to NO repair so we have to have a transplant at 20 pounds. They took him at 34 weeks to give him a better chance of making it. I was told by several doctors and nurses that they didn't see him making it past the first day, he is out to prove them wrong and getting stronger every day. We are still in the nicu but hopefully we will be home soon, his intake is only at 60 and we need to get it to 100 inorder to go on the machine. Every time they get above 60 we start having trouble. I hate it that he has to go thru it but I thank god for him :) To all the mothers that are fixing to go thru any kind of kidney damage, don't give up there is hope.

Comment on Photo Gallery by Clara

Mon, 07 Nov 2011 16:50:15 +0000

I'm very happy your son is doing so well.. i just had a baby born with Polycystic kidney disease.. he is on dialysis as well and will be needing a kidney transplant as soon as he is able to receive one. we were also told he would not make it but here he is! like a champ, fighting and doing well.. now we are just anxious to have him home on overnight dialysis as well... every day we get to see him is such a blessing. its great to see how well your son is. i hope one day we too can see our son playing and laughing and with his new kidney. Gavin is one brave little man and has given us more faith and hope by sharing his story. God Bless little Gavin and your family!

Comment on Guestbook by michelle

Tue, 01 Nov 2011 15:11:30 +0000

Hi ive just been reading about Gavin i hope he is well, my grandaughter was born with renal failure but it wasnt detected untill she was 4 weeks old and then told to expect the worse, she has now just gone 2 years old after having both her kidneys removed, she goes to birmingham childrens hospital 3 times a week for diallisis until she can go on the transplant list, we have had many tears over the months with everything associated with kidney failure, she has been very ill but always bounced back, she had her 16th operation last week to replace her hemo line and was up and laughing a few hours later, my prayers are with you all god bless x