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allergic  bakersfield  bumpy rash  cough  infusion site  infusion  itchy bumpy  itchy  new  rash  reaction  site thigh  site  skin 
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Last Build Date: Fri, 23 Feb 2018 19:03:59 +0000



Fri, 23 Feb 2018 19:03:59 +0000

I’ve got bronchitis. Feeling dreadful. Been stuck in bed for almost a week. Cough cough cough. I still haven’t found a reasonable solution to my sub-q remodulin adhesive allergy issues. It’s really strange. I’ve tried every adhesive known to man, and even if they don’t cause a reaction when tested on my arm, I still […]

Hello 2018 I am still itchy

Sat, 27 Jan 2018 02:39:53 +0000

Happy New Year and stuff. I saw a really great allergist in December. We did some experiments and found that I was definitely allergic to the adhesive of my Cleo infusion sets (a little device that inserts and holds a catheter under my skin with a little plastic button that allows me to dock with […]

itchy again. GAHHHHHHH.

Sun, 03 Dec 2017 14:11:18 +0000

On Friday, exactly two weeks after my final dose of Prednisone, and with the Prednisone side-effects nearly gone, the full-body itch returned. My entire skin hurts. I don’t know if you’ve ever noticed, but in large quantities the “itchy” sensation is actually a special kind of pain that makes you want to claw your skin […]

Walter the Lazy Mouse

Fri, 01 Dec 2017 21:38:33 +0000

Here comes a non-medical post for you. Enjoy ;-) Walter the Lazy Mouse, by Marjorie Flack, is an old family favorite. “Have you seen my father and mother and sisters and brothers go by?” I gave a hardback copy to Rosie for her fourth birthday, and she adores it. We’ve all read it aloud to […]

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lots better

Fri, 17 Nov 2017 01:08:55 +0000

I’m still alive! Thanks for all the sweet comments and emails, everyone :) I saw my pulmonologist up at UCSF on Monday the 6th. Usually I take myself up to SF on the BART and the Muni, but I was so exhausted and in so much pain that Henry offered to drive me, thank goodness. […]

horrible allergic reaction

Sun, 05 Nov 2017 15:54:19 +0000

Guys, I’m having a really hard time. This allergic reaction to adhesives has now spread over my entire body. I itch EVERYWHERE. My skin hurts and burns everywhere. It feels as if I’m wrapped in coarse sandpaper and have a terrible sunburn. I have scabs everywhere from scratching my skin raw. I look like I […]

Allergic Contact Dermatitis

Sun, 08 Oct 2017 04:18:34 +0000

Guess what, I have a difficult new condition. After the Urgent Care doc diagnosed me with Post-Injection Inflammatory Reaction at the infusion site on my left thigh, I figured I could start a new infusion site on my right thigh and be fine for another few months. NOPE. The itchy bumpy rash showed up in […]


Sun, 17 Sep 2017 17:00:14 +0000

That itchy bumpy rash around the Remodulin infusion site on my left thigh wasn’t getting better, so on Friday morning I started a new infusion site on my other leg. The rash still wasn’t better on Saturday and I was worried that it might be an infection so I went to Urgent Care where a […]

checking in

Fri, 15 Sep 2017 16:59:26 +0000

Just checking in to say I’m still here :) I’m still getting over the tail end of the Bakersfield Bacteria Cough. Jeeze. Also I’ve developed an itchy bumpy rash around my Remodulin infusion site. Other than that, though, I’m feeling pretty good! I baked apple turnovers yesterday with apples from the tree in the front […]

Bakersfield Bacteria

Sun, 13 Aug 2017 15:44:25 +0000

All is well with me and SB :) :) :) Bakersfield is halfway between us, so a couple weeks ago we met there to spend the weekend together and it was lovely. Bakersfield, for those who don’t know, is a desert hellhole in the California Central Valley, but the La Quinta motel is very very […]