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Last Build Date: Wed, 03 Apr 2013 11:44:59 +0000


Download Old Before My Time free on itunes

Wed, 03 Apr 2013 11:44:59 +0000

   Download your copy of Old Before My Time from itunes It’s free until Saturday.              

Old Before My Time published in Taiwan

Tue, 02 Apr 2013 11:04:09 +0000


Hayley Queen of Hearts

Thu, 14 Feb 2013 17:08:13 +0000

Thanks to everyone who came to my Queen of  Hearts ball last week. I had an amazing time and we raised £4,000 for the next Progeria Reunion. Thank you to Jason Fry Photography for the lovely photos

New year, new treatment

Tue, 01 Jan 2013 08:44:22 +0000

Happy New Year to everyone. Me and Mum are getting ready to fly to Boston at the weekend for results of my drugs trials. We’re hoping for some good news. Mum says it’s going to be -20 out there, so I need to wrap up warm.

A Christmas photo from Hayley’s album

Mon, 24 Dec 2012 09:32:47 +0000

Merry Christmas everyone. Thanks for all your lovely messages and cards. I hope Father Christmas is kind to you all. I’m hoping to get Justin Beiber concert tickets in my stocking.  

Old Before My Time Free on iTunes this week

Tue, 11 Dec 2012 16:12:36 +0000

Get your free copy of my book Old Before My Time now. For the next two days you can download a free copy from iTunes     —

Hayley wins Argus Courageous Child of the Year Award

Tue, 30 Oct 2012 11:41:32 +0000

Hayley was one of six special children named The Carol Barnes Courageous Child of the Year at the Argus Acheivement Awards in Brighton on Sunday. Congratulations to the winners

Argus Achievement Awards

Fri, 26 Oct 2012 10:05:40 +0000

Me and Mum are off to Brighton this weekend for the Argus Achievement Awards. Thanks to everyone who nominated us for the Courageous Child of the Year and Mum of the Year.  

So glad Girls Aloud are back

Thu, 25 Oct 2012 12:17:50 +0000

Great news Girls Aloud are back on tour fopr their 10th anniversary. I hope I can get tickets for their Ten tour. Here’s a photo of me and Kimberley Walsh when I met them back stage in 2008. They were all so  lovely.

Another 5-star review for Hayley’s Old Before My Time on

Fri, 31 Aug 2012 16:48:56 +0000

Thanks to AU Mom in Tennessee, USA  for this great review of Old Before My Time: My Life with Progeria by Hayley and Kerry Okines ‘Excellent read. I enjoyed the fact that the book was written in her own words. This little girl has such a positive outlook about life and death. She is such an inspiration [...]