Last Build Date: Wed, 03 Apr 2013 11:44:59 +0000
Wed, 03 Apr 2013 11:44:59 +0000Download your copy of Old Before My Time from itunes https://itunes.apple.com/us/book/old-before-my-time/id544240218?ls=1. It’s free until Saturday.
Tue, 02 Apr 2013 11:04:09 +0000
Thu, 14 Feb 2013 17:08:13 +0000Thanks to everyone who came to my Queen of Hearts ball last week. I had an amazing time and we raised £4,000 for the next Progeria Reunion. Thank you to Jason Fry Photography for the lovely photos
Tue, 01 Jan 2013 08:44:22 +0000Happy New Year to everyone. Me and Mum are getting ready to fly to Boston at the weekend for results of my drugs trials. We’re hoping for some good news. Mum says it’s going to be -20 out there, so I need to wrap up warm.
Mon, 24 Dec 2012 09:32:47 +0000Merry Christmas everyone. Thanks for all your lovely messages and cards. I hope Father Christmas is kind to you all. I’m hoping to get Justin Beiber concert tickets in my stocking.
Tue, 11 Dec 2012 16:12:36 +0000Get your free copy of my book Old Before My Time now. For the next two days you can download a free copy from iTunes https://itunes.apple.com/gb/book/old-before-my-time/id544240218?mt=11 —
Tue, 30 Oct 2012 11:41:32 +0000Hayley was one of six special children named The Carol Barnes Courageous Child of the Year at the Argus Acheivement Awards in Brighton on Sunday. Congratulations to the winners http://www.theargus.co.uk/news/10012299.Standing_ovation_for_children_at_Argus_Achievement_Awards/
Fri, 26 Oct 2012 10:05:40 +0000Me and Mum are off to Brighton this weekend for the Argus Achievement Awards. Thanks to everyone who nominated us for the Courageous Child of the Year and Mum of the Year. http://www.theargus.co.uk/yourargus/argusachievementawards/index/
Thu, 25 Oct 2012 12:17:50 +0000Great news Girls Aloud are back on tour fopr their 10th anniversary. I hope I can get tickets for their Ten tour. Here’s a photo of me and Kimberley Walsh when I met them back stage in 2008. They were all so lovely.
Fri, 31 Aug 2012 16:48:56 +0000Thanks to AU Mom in Tennessee, USA for this great review of Old Before My Time: My Life with Progeria by Hayley and Kerry Okines ‘Excellent read. I enjoyed the fact that the book was written in her own words. This little girl has such a positive outlook about life and death. She is such an inspiration [...]