Subscribe: Your Diabetes May Vary
http://ydmv.blogspot.com/feeds/posts/default?alt=rss
Added By: Feedage Forager Feedage Grade A rated
Language: English
Tags:
care  diabetes  fda  glucose  health  insulin  medicare  people diabetes  people  spare rose  strips  team  test strips  test 
Rate this Feed
Rating: 3.3 starRating: 3.3 starRating: 3.3 starRate this feedRate this feed
Rate this feed 1 starRate this feed 2 starRate this feed 3 starRate this feed 4 starRate this feed 5 star

Comments (0)

Feed Details and Statistics Feed Statistics
Preview: Your Diabetes May Vary

Your Diabetes May Vary



Your Diabetes May Vary is about a family living with type 1 diabetes. Families vary insulin, food, activity and use all kinds of medical technology to try to manage diabetes. Living with T1 diabetes is more than managing. Living with diabetes is making it



Last Build Date: Thu, 16 Nov 2017 15:42:39 +0000

 



Vote for FDA's AP Efforts as Excellent Public Service

Fri, 07 Jul 2017 14:10:00 +0000

FDA has given us, diabetes community, excellent efforts on artificial pancreas regulation. They have worked with innovators and patients to help the regulatory process work for people with diabetes. We should say thanks. Here is an easy way to do that.


Vote to recognize FDA's Artificial
(https://servicetoamericamedals.org/peoples-choice/index.php)

Scroll down and click next to
"Courtney Lias, Stayce Beck and the FDA Artificial Pancreas Team"

Here are the details:
The FDA's Artificial Pancreas team was selected as a finalist for the Samuel J. Heyman Service for America Medal in the Management Excellence category for our contribution to the first-in-the-world approval of the 670G hybrid closed loop system last fall. These Medals are awarded by the Partnership for Public Service, a non-profit organization whose mission is to "help government serve the needs of all Americans by strengthening the civil service and the systems that support it." In part the nomination says:

Before Lias and Beck got involved, both the industry and patient advocacy groups publicly voiced concerns that FDA’s review process caused unnecessary roadblocks and was standing in the way of developing this technology and delivering it to those in need. 
Lias and Beck changed this dynamic by treating all those involved—the device companies doing the research, the doctors, the hospitals and the advocacy groups—as partners, not adversaries, as they worked to improve and speed up the process. 
“They used to see the FDA as a barrier and now I believe they see us as an ally,” Lias said.
Read the full details of the nomination.

More information about the award program can be found here https://servicetoamericamedals.org



Meter Accuracy Study - DTS

Tue, 27 Jun 2017 16:35:00 +0000

Diabetes self-care is driven by data from glucose meters. The accuracy of meters matters because it is the cornerstone living successfully with diabetes. The Diabetes Technology Society just published a blinded study of meters. Have a look: https://www.diabetestechnology.org/surveillance.shtml



Pills better than insulin for t2?

Thu, 09 Feb 2017 17:34:00 +0000

Physicians Briefing reports a Swedish study that shows a lower risk of mortality (I vote that is a better outcome) with oral type 2 medications than with insulin. Good to see the study considered hypos. Given that diabetes is underestimated as a cause of death, it is good to see research looking at the big picture of all-cause mortality.

WEDNESDAY, Feb. 8, 2017 (HealthDay News) -- For patients with type 2 diabetes, novel oral glucose lowering drugs (GLDs) are associated with reduced risks of all-cause mortality, cardiovascular disease (CVD), and hypoglycemia, compared with insulin use, according to a study published online Jan. 24 in Diabetes, Obesity and Metabolism. 

Still - YDMV. The best course of treatment is the one the patient and physician agree meets the individual needs.

I think this "all-cause" approach should be taken when considering access to care beyond medications. One size doesn't fit all. Disrupting access to diabetes tool from strips, to the appropriate pump should be considered on a similar basis. 



Diabetes is Underestimated

Thu, 02 Feb 2017 16:43:00 +0000

Sometimes I think diabetes it is the Rodney Dangerfield of health. Unfortunately, it isn't a joke.

A recent study highlighted in this piece at Medscape says diabetes is underestimated as a cause of death in the US. The study puts diabetes, "the third leading cause of death in the United States in 2010, after diseases of the heart and malignant neoplasms and ahead of chronic lower respiratory diseases and cerebrovascular diseases." 

People with diabetes can thrive. By engaging early, we minimize complications, costs, and deaths. We need the appropriate tools and medications to be successful. 

Join me in calling on Congress to maintain the prohibition on pre-existing conditions, like diabetes, being grounds to exclude people from health care coverage. 

It is easy. 
  • The Diabetes Patient Advocacy Coalition has an easy to send letter to Congress. I'm sending it often. You can too.  
  • I'm sending Tweets from their Twitter Scorecard. Join me.
  • Getting through to our Senator's by phone has been iffy recently. So I 'm sending snail mail. 
Not only do we need to work with our doctors to care for diabetes. We need to work with our elected officials to maintain access to coverage. We need respect.







My Diabetes May Vary

Wed, 25 Jan 2017 16:57:00 +0000


Variations are inevitable and frustrating. 

Following treatment for cancer, I started medications as part of recovery including an emotional health medication. They seem to help. But the emotional health drug has a side effect - it bumps up my glucose levels. This feeds a feeling of fasting glucose frustration.

My go-to response is to try "to eat better." But when I don't see immediate results, the myth that I can control the rat bastard with diet, makes me feel a temptation to just eat less, to produce less glucose. The risk (and some days the reality) then becomes to eat less AND worse.

I aggravate everything doing that. It is a losing proposition.

So type 2 diabetes becomes more front of mind. I am checking glucose more. (Boy, I would love a sensor that filled in the gaps in my glucose profile. Come on Libre)

I think on balance the numbers are OK-ish. But they show that type 2 diabetes doesn't play well with others health issues, including emotional health.

As it changes, it demands additional adjustments. I know that is the deal. Knowing it doesn't make it less frustrating.


Type 2 is inevitably frustrating.


MDMV





CMS Ruling on CGM

Mon, 16 Jan 2017 17:49:00 +0000

The Centers for Medicare & Medicaid Services has concluded that Continuous Glucose Monitor Systems can be covered as durable medical equipment.* Specifically, those with an FDA label for the purpose of adjusting the treatment diabetes.

In practical terms currently, means the Dexcom G5. The CMS finding also established criteria for coverage that is an innovation target for other devices to achieve. Codes and coverage still need to be worked out. Still, this is great news. As one piece on the ruling observed. "Nearly 25% of patients with type I diabetes fall under Medicare."

A lot of effort, by many, contributed to this success. The industry has maintained a rapid pace of innovation. FDA has responded with timely reviews of CGM applications, most recently with a non-adjunctive label for the G5. A majority of both houses of Congress supported legislation in the last Congress supporting coverage. Courts ruled in individual cases for coverage. We, the people with diabetes, advocated in every avenue open to us to ask for coverage.

Positive diabetes health news is great. Savor this.


*You read the CMS Ruling at https://www.cms.gov/Regulations-and-Guidance/Guidance/Rulings/Downloads/CMS1682R.pdf



Last Minute Shopper Alert: Stuff the Vegas UnCon into Their Stocking.

Mon, 19 Dec 2016 16:53:00 +0000

Looking for one more brilliant gift?

Your Diabetes May Vary but the gift may not. What's better thanVegas UnConference?

Don't know about the UnConference? Learn here, it is perfect for People with Diabetes (PWDs) and the People who Love Us (PLUs). Find your people. Have fun in the process.

Winter is coming. With it the winter doldrums and the need for a Valentine's Day celebration. Give the Unconference now as a stocking and join the fun in Vegas.

Book the UnConferece here. Then with Amazon Prime you can have these socks to hang from the bed post in time for a visit from Naughty Santa's Helper.

Wink Wink, Nudge Nudge.




I had prostate cancer. It’s been a blessing.

Wed, 14 Dec 2016 20:44:00 +0000


I've been out of circulation.

Turns out I’m fortunate; I had prostate cancer. It’s been a blessing.

Fortunate first because, I’m using the past tense - HAD. OK, it is still early, but all the information so far points to success. Score. I’m saying had.

From the first concerns to the diagnosis, and surgery, I had a lot of fun riding hundreds of miles on my bike. They had me in better condition than I have been in for a decade or more. Being in better shape helped. Rides were my meditation and were the space where I could get emotionally ready for the surgery.

I’m lucky it was detected while it was localized. What matters is I had, and still have a stunning level of support from family, friends and health care team.

I wince when people say they are sorry for what I have been through. While I greatly appreciate that sentiment, sorry isn't the lens I see my experience through.
I’m not at all sorry for it.

I am thrilled that, if cancer was in my life’s path, it was slow growing, highly treatable type.

I greatly appreciate that my family doctor of 30+ years connected me with a second opinion. That second opinion proved to be the star of my team. I benefited from the personal relationship between these two professionals. It is such that a phone call from my primary was all it took to get me a personal phone call and appointment from a surgeon whose staff said his calendar was booked for months. That took less than a day.

I could not work with better people. Family first isn't what they say; it is how they live. It was never about picking up the slack; it was always about being proactively supportive.

My family is wonderful. They showed that even when I didn’t. They supported my both contradictory fierce independence charting a path through the process and rants at the myriad of SNAFUs that come from the spectacularly non-systematic health process, incorrectly called the healthcare system. I am sure my vacillating between being noncommutative or a ranting loon was not fun.

I’m not sorry. I’m blessed.

I much more clearly see the many blessings who are the people in my life.

Love Ya Mean It




Thu, 08 Sep 2016 15:17:00 +0000

Glycemic Index' May Be Too Unreliable to Manage Diabetes: 
Wide variability seen after eating same food at different times

The opening: Glycemic index values of the same foods can vary widely and may be an unreliable indicator of blood sugar response, according to a new study.

No kidding?!

YDMV



Sugar Surfing comes to Minneapolis

Mon, 27 Jun 2016 12:23:00 +0000

From Scott's Diabetes Sugar Surfing comes to MinneapolisDr. Stephen Ponder is a pediatric endocrinologist and certified diabetes educator with Scott and White Healthcare in Temple, Tx. He’s lived with type 1 diabetes since March of 1966 and has been a pioneering force in diabetes telehealth and remote care for many years.One of his latest projects is Sugar Surfing, a modern approach to managing diabetes.“You can’t stop the waves, but you can learn to surf.”It’s happening on September 24th, 2016, 12:30 pm (workshop runs from 1:00 pm to 4:00 pm, at Open Book.If you’re nearby and interested, please register and share! Space is limited, so don’t delay!Register Now!More at Scott'shttps://scottsdiabetes.com/2016/06/26/sugar-surfing-minneapolis/[...]



Wanted: Teen Athletes with Diabetes (Girls and Boys) Team Novo Nordisk Camps

Wed, 15 Jun 2016 14:32:00 +0000

From their release:

Team Novo Nordisk Seeks Young Athletes with Type 1 Diabetes

Tuesday, June 14, 2016 — ATLANTA, Ga. – Team Novo Nordisk, a global team of athletes with diabetes, spearheaded by the world’s first all-diabetes professional cycling team, kicks off the first of two talent identification camps today in Athens, Ga. The talent identification camps serve as a key recruiting tool for Team Novo Nordisk to develop athletes for the men’s professional squad and help fulfill the team’s ultimate goal of racing in the Tour de France by 2021. Currently, 48 young athletes with type 1 diabetes from 18 different countries are slated to attend. Applications are open for a limited amount of remaining spots at the second camp, which begins July 12, at www.teamnovonordisk.com.




The Best Insulin Pump - The One You Use

Tue, 31 May 2016 13:15:00 +0000

I wrote about the best Insulin Pump a few years back. My view hasn't changed much, so, Summer Rerun. So here what I said in 2012The question which is the 'best' insulin pump floats up in diabetes conversation regularly. Best is a natural but probably the wrong question.The quality of pumps and their ability to perform the basic insulin delivery functions is so good that these days users and their care teams have the potential to define the device and vendor that most appropriately fits a person's unique lifestyle. That is a real wordy way of saying, ‘there is no best pump.’Happily one size does not fit all.People with diabetes have different needs because their diabetes varies. So don't look for the absolute best pump but to the device that best accommodates your individual lifestyle. This dude may love his backpack,  but it may not be your best choice. (And what is in the giant bottle on the bottom of that thing anyway?)Design and feature matter. For example the patch, folks seem to have a love/hate relationship with the OmniPod. That is great. If you are drawn to the patch pump, no tubing, PDA driven approach -great. If like my kids. You think it is too big and uncomfortable and tube are okay a more traditional pump may be better in your life. There are a lot of criteria individuals can consider. Remotes are really great for little kids. Lock the pump down and have mom or dad operate it with a remote control. How much insulin do you use and how much does it hold. Is it a color a young girl is comfortable wearing 24/7.CGM may matter. If CGM integration is mission critical only Medtronic has int on the market in the USA. Animas, Roche, OmniPod, and Tandem are in the on-deck circle with Dexcom. Remember that deck circle is a baseball term. There is no clock in baseball and Animas, and Omni pod have been next in the line up for years waiting to come to bat. Some of the fans in the stands are getting rowdy and jeering the Ump wanting to see them come to bat. Food databases are touted as a key feature. If they are to your look carefully at the implementation and ease of building realistic meals. Can you customize the food database to your needs.Service matters. Check it out by calling the service in the middle of the visit by the sales team. Like everything else service varies. We have had great service from Animas other say they have had issues. Read up on TuDiabetes and CWD and keep in mind that when the device is as integral a part of life as an insulin pump, individual service expectations will be very high.Sets matter. People talk about pump features, but the set and how it feels going in are where the rubber meets the road. -  Well, the insulin meets the subcutaneous tissue. Try on sets as part of the sales process. Sets plural, not set.Instead of which is best maybe the question should be what features best adapt to my lifestyle. That the art and science of insulin pumping have progressed from that backpack size prototype, in the black and white pictures above, to diverse, miniature devices is great.What is best is we get to choose based on our individual preference.Related posts from the YDMV archives:Why PumpWhat would be Really Cool.Updated with some grammar & spelling fixed 5/31/16. Sure there are still a ton of errors. My Writing May Vary[...]



You Diabetes May Vary So Access Matters (Wherein I borrow from Manny & Scott)

Thu, 05 May 2016 14:44:00 +0000

Diabetes is complex.It is highly dependent on patient self-care actions that include daily self-monitoring of blood glucose, medication and dosing adjustments, diet measurement, carb management, physical activity, and logistic management of all the stuff needed to do all of the above. Diabetes has a well-documented comorbidity of clinical depression and a subclinical level emotional exhaustion from the burden of management. Diabetes is complex.Whoever manages it, needs tools they can work with.My dear friend Manny Hernandez has a spectacular visual representation of the time patients self-manage. A chart that shows the percentage of time people with diabetes self-manage vs the time we spend with our physicians, diabetes educators, and care teams. It is below.See that little white line? That is time with the care team. BUT to make the little white sliver visible, Manny had to exaggerate its proportion of the graph. This is not to minimize the role of our professional care teams but to make it visible. Manny is not alone in making the point of the importance of patient self-care. Here is Manny’s chart, presented by renown endocrinologist Dr. David Marrero at the ADA Scientific Session in 2015. In the image, we see one diabetes doctor talking with a huge room full of other diabetes doctors making the point that respecting the role of patients is critical to success.Image source Diabetes Mine - TwitterLet just pause and think about what this image represents: a doctors and a patient collaborating to advance the art and science of diabetes care at the ADA Scientific Sessions.I think that patients and doctors collaborating is a brilliant model. All the diabetes complexity outlined in the opening paragraph, along with all the associated variability is self-managed the vast majority of the time by patients guided with a small but critical sliver appointments with their health professionals. Somehow in that little white space, doctors and patients figure out jointly how to make the time represented by the blue space successful.All this is a very long way of starting to making a case for asking, "Who knows best what will drive success in the all the blue time on Manny’s chart?"To put it briefly, again, I turn to a friend:"My initial reaction is that healthcare decisions, such as which insulin pump to use, should not be made outside of the doctor/patient relationship," - Scott JohnsonWe have seen that disruption to access to testing supplies in an attempt to reduce supply costs, resulted in increased hospitalization, costs, and mortality.Diabetes is complex. It is highly dependent on patient self-care.There are 30 million or so people with diabetes in the US. It is a safe bet we have different approaches to succeeding in the blue space on Manny’s chart. Long-term diabetes costs are contained by what happens in that blue space. The best practice is individualized diabetes care programs. The appropriate device may vary.You Diabetes May Vary - So Will Your Care Program and Your Diabetes Stuff. Access matters for long-term success. SHARE YOU ACCESS STORYRelated (and ancient) YDMV  Content:The Best PumpWhy Buy into Pumping[...]



#SuspendBidding

Tue, 05 Apr 2016 18:07:00 +0000


First, there was a poster at ADA last June. Then a white paper and now a peer-reviewed article in Diabetes Care, ADA's journal. 

The evidence is clear. Medicare's program to save money on test diabetes strips cost more in hospital care than it saved and increased mortality. 
  


Previously on YDMV:







Getting Off the Harm Merrygoround

Fri, 18 Mar 2016 15:38:00 +0000

Here we go again. I have written about harm from bidding before. It just got kicked up a notch. 

Today the Journal Diabetes Care has an article on Medicare Bidding in the online preview of the April edition. What 8 months ago was a poster has been peer-reviewed and published in a premier diabetes medical journal. 


The paper builds on the Government Accountability Office (GAO) concerns on the safety monitoring of the Competitive Bidding Program.

Meanwhile, Medicare says the program is great, no harm, no foul, and they don't hear any complaints. Oh yeah, and they are going to put beneficiaries through a new round of disruption starting in July.  

Let's NOT do that. 





HELP I Need Somebody. (In the Next Ten Days)

Mon, 29 Feb 2016 17:37:00 +0000

In HELP, the Beatles protect Ringo from an evil cult. Solid plan. People with diabetes could use some protecting.I am not, exactly, suggesting the Senate are an evil cult, but people with diabetes could use the Senate's HELP. Can you find two minutes, in the next ten days, to ask the Senate HELP Committee (Health, Education, Labor, and Pensions) to consider diabetes?Maybe even ACT NOW. On March 9th, the Committee is going to consider health bills. Ask them to bring S. 586 to the table.Click the picture.Fill in your name and address.DPAC drafts letters for your Senators*. Feel free to ad you diabetes story to the letters.Push submit to send. *DPAC customizes your letters to your Senators. We know who is on the committee, who has cosponsor S586, and who need to support it. All you need to do is click and ask Senators to work with their colleagues bring S 586 to the table. After sending the letter, maybe Tweet too. Find you Congress members here and some ready to fire Tweets. #DiabetesCommissionS. 586 creates a commission that will help better address diabetes, in a fiscally responsible manner. The act is budget neutral, and prior experience suggests this commission can have a significant positive impact on care. A generation ago a National Diabetes Advisory Board created the pivotal Diabetes Control and Complications Trial (DCCT) that has defined modern diabetes care.A new generation of innovative medications and devices are coming to market that can revolutionize how Americans live well with diabetes. Doing so will require the government to change the status quo of federal bureaus working alone, to a coordinated national response, driven by research experts, physicians, educators and people living with diabetes, to keep those agencies with interfering with the doctor-patient relationship.(HELP may not ACT NOW.  If not, Later, Rinse, Repeat - the Committee meets in April too.)[...]



Spare A Rose - Opening Days Deal: Help Kids AND Make Me Look Silly.

Mon, 01 Feb 2016 15:48:00 +0000



The fourth annual Spare a Rose campaign starts today. 

Spare a Rose helps fund IDF's Life for a Child program bringing insulin and support to children in developing nations who may otherwise go without. Spare a Rose is easy, give one less rose this valentine's day and donate the value of that rose to IDF or give a dozen.  

Spare A Rose is a fun way we, people with diabetes, can join philanthropists, industry and other who support these kids. 

Type 1 requires ongoing insulin. Through Spare a Rose you make an ongoing monthly gift to IDF. With the Monthly Donation section of the Spare A Rose giving form your can set ongoing giving. The funds flow straight from you, through PayPal, to IDF and kids in need.

Spare A Rose is a community effort.  It is fun to be a part of something so useful, needed and simple. Now add to that the opportunity of publicly embarrassing your truly

I would love to see Spare A Rose start quickly with ongoing donations. So I'll wear these Disney World map tights to the Friends for Life banquet this summer if we can raise three dozen ongoing gifts in the first three days of Spare A Rose.

Help kids and make me look silly in public at the same time. What could be better? 

(image)


#SpareARose



Recall on Clinical Glucose Test Strips - Do Consumers Get The Same Attention?

Fri, 29 Jan 2016 14:02:00 +0000

FDA announced a recall of glucose test strip used in clinical settings. The recall in part says,"..because they may report falsely low blood glucose levels. Because the test strips are reporting falsely low blood glucose when the true levels are above 265 mg/dL, there is a risk that the health care provider would not diagnose hyperglycemia (high blood sugar) including Diabetic Ketoacidosis and Hyperosmolar Hyperglycemic Syndrome in a timely manner and fail to treat elevated blood glucose levels."

http://www.fda.gov/Safety/MedWatch/SafetyInformation/SafetyAlertsforHumanMedicalProducts/ucm483792.htm

So if you own a clinical machine, you should take precautions and check you test strip lots.

What we don't know is are the machines and strips used by millions every day working as approved. Who know? How would we know? Ther is no proactive, ongoing post-market process that acquires test strips the way PWD do; you know from retail channels and test them.

The vast majority of comments to FDA on the proposed glucose meter guidance in 2014 called for robust post-market processes. Procedures have been written but when will they be used?

People living work a day lives run the same risk of falsely low or high glucose levels that clinical machines present. More so if the number of blood checks done on retail machines vs. clinical ones is factored in.

Shouldn we be safe with home use devices?




Throw the Red Flag. Bidding Strips in No Touchdown

Mon, 14 Dec 2015 20:55:00 +0000

I have written about test strips, bidding, and harm. This week there is an opportunity to look into the details. But it is football season so I thought I would put the reasons to take that opportunity in football terms:

Throw the Red Flag.




Medicare instituted a program to bid test strips. It looked like a great play. They certainly are celebrating in the end zone.

The replay doesn't look good. Instead of tracking patients over time they started with a new group each quarter, in essence starting the game at zero every quarter. They counted the savings yards gained and said the scored but didn't factor in the yardage lost as increased hospitalization cost and increased mortality.

Want the details from all the cameras?  Join the webinar.



Thanks NY Times, Please Consider Diabetes Testing too.

Wed, 25 Nov 2015 14:04:00 +0000

The New York Time has a Piece titled,  "F.D.A. Targets Inaccurate Medical Tests, Citing Dangers and Costs" up this week. It is a good bit about the accuracy of medical lab tests.

I am thankful for attention to patient safety driven by quality testing. That applies at home as well as the lab. So I sen this to the reporter. Fee free to join me in asking for equal attention to the test people with diabetes do at home.


Thank you Mr. Pear for your article on lab test it certainly worrying and starting a conversation on the quality and safety of lab tests.
 
An equally concerning issue is the accuracy of home testing devices regulated by FDA. Diabetes test systems are currently required to be accurate to +/- 20%. Level lower than much of the rest of the world. 
 
While FDA has suggested new, more accurate standards, many devices fail to preform to the existing regulatory standard for which they were approved.* FDA has acknowledged this problem. However there is no process to remove underperforming systems form the market. 

Worse Medicare bidding has disputed the market, driving price, not safety or quality. Research shared at the American Diabetes Association scientific sessions showed that the ‘savings’ Medicare achieved were more than offset by increased hospitalizations and mortality.# 
 
I look forward to reading more of the dialog on medical testing you have started and hopefully it will expand to help the 30 million Americans with diabetes stay safe. 
 
*“Blood Glucose Meter Accuracy Problems Acknowledged By FDA, Industry And Clinicians.” ‘Medical Devices Today’ Medicaldevicestoday.com, 27 May 2013. Web. 8 June 2013.

#“CMS Competitive Bidding Hurts Medicare Beneficiaries With Diabetes,” ‘EndocrinologyAdvisor’ 18 June 2015. http://www.endocrinologyadvisor.com/ada-75th-scientific-sessions-2015/competitive-bidding-diabetes-medicare/article/421388/




FitBit for Diabetes.

Thu, 12 Nov 2015 14:30:00 +0000



The American Diabetes Association® is one of three charities competing in Fitbit®’s FitForGood challenge. This means YOUR steps could help us win big to help Stop Diabetes®.

You can join in 3 easy steps!


1) Please visit www.fitbit.com/fitforgood. Sign up. Select the American Diabetes Association as your cause.

2) Put on your Fitbit Activity Tracker or use Mobile Track in the Fitbit app on your phone.

3) Start walking. You can walk anywhere, anytime—and every step you take between Nov. 9 and Nov. 20 will be in support of the Association.

In addition to logging your physical steps, you can earn an additional 1,000 steps per day by sharing from the campaign dashboard to social media. So, share away on Facebook and Twitter




Of Test Strips, Bidding, and Harm

Wed, 28 Oct 2015 17:26:00 +0000

I have been thinking about test strips. Again - Still. Some of you may know this is a reccuring topic with me. It is, because.., well..., strips matter. Test strips are the foundation of good diabetes self-care. People with diabetes, particularly those who use insulin, need to test frequently to manage their blood glucose and make care adjustments, particularly with the insulin. As simple as it sounds test strips are vital to avoiding dangerous low blood sugars from insulin. Insulin can be a dangerous drug. An article in the Journal of the AmericanMedical Association estimates that ninety-seven thousand of Americans a year go to the emergency room due to low blood sugars caused by insulin.(1) The journal goes on to says most of those insulin ER visits are seniors, Medicare’s people and that one in three of the ER visits the person is hospitalized. When it is dangerious, it is expensive.The ninety-seven thousand mentioned cited in that article is MORE than the government estimate of Americans who go to the ER for stimulants including methamphetamines.(2) It is shocking that insulin beats breaking bad as reasons Americans go to the ER. However, the comparison does help put good self-management in perspective. Clearly a goal is the safe use of insulin that helps keep America's, particularly seniors, well while preventing the need for emergency room and avoiding unnecessary hospital admissions cost to Medicare.We all have heard of medical trials. Trials, because they can impact the participant's health, have strict rules. Some of those rules came about as the result of studies that were unethically done on people without their permission or knowledge.(3) It seems logical that if someone were going to introduce new means of accessing something as critical to maintaining health as test strips that they would follow the trails safety rules.Unfortunately, that was not the case.Medicare changed the rules for how beneficiaries get test strips. Medicare tested it in 2011 in nine pilot cities around the country. But they didn’t treat it as a clinical trial or follow safe trail protocols. Maybe because they judged the rules don't apply to them as a government agency. Medicare said it was a huge success, they saved money and there were few complaints and no disruption.A poster presented at the American Diabetes Association scientific session in June 2015 by skilled academic scientists looked carefully at Medicare’s data. It showed that in the nine pilot cities(4) there was a disruption of patients access to test strips. How and how many strips people with diabetes acquired shifted. In some cases, people on insulin stopped receiving testing supplies. The researchers found an increase in hospitalizations, higher cost, and more mortality in people with diabetes using insulin in the test cities.I don't know who is right, Medicare, who says there was no harm and extended the program nationwide or the researchers who found statistically significant increase in mortality, hospitalization, and costs in Medicare's data. I am not a scientist, a statistician or a bioethicist. I do want to know if people on Medicare are safe.Congress is paying the bills. They authorized this experiment. They should find out what the truth and tell us is Medicare program safe? ACT NOW to ask Congress to get to the truth. (1) Geller AI, Shehab N, Lovegrove MC, et al. National Estimates of Insulin-Related Hypoglycemia and Errors Leading to Emergency Departme[...]



Help out DHF and the DOC with a two question survey, Especially T2s

Wed, 28 Oct 2015 12:45:00 +0000

This from my friend Corinna

I wanted to let you know about a project we're working on and ask for your help with a short (2-question) survey. We're working on a Tier 1 PCORI Pipeline to Proposal  project aimed at eventaually looking at the efficacy of peer support delivered online. You know, that thing that the DOC does. 

Would you take a couple of minutes to respond? 

You can find the survey on TuDiabetes at: http://www.tudiabetes.org/forum/t/meet-idocr/48282


Spreading the word would also be appreciated. Please point other PWD, especially those living with Type 2, to this survey. Thanks so much.

With warm aloha,
Corinna 



The Big Blue Test - Join by Moving

Wed, 14 Oct 2015 13:51:00 +0000

The Big Blue Test (BBT) starts is Big Blue 7th year. I tell people I treat my T2D with a bicycle and metformin but mostly the bicycle. Mostly the bike because it is more fun and I think is doing me more good. Starting today, I'll send my rides to the Big Blue Test. Here's an adaptation of the BBT announcement:Today October 14, BBT will begin collecting Big Blue Test entries to help raise money for diabetes charities, but they have made a few changes to the program based on user feedback.Diabetes Hands Foundation has heard from many of us that during the #BigBlueTest campaign each year you feel more motivated to get up and get active. Now in its seventh year, Big Blue Test is growing beyond its origins as a once yearly movement to inspire participants to get active and help diabetes-charities just in the fall. BBT will now have three windows of collection: fall, winter, and summer.As you probably know, the Big Blue Test program encourages people to get active for 14-20 minutes and to share that experience on BigBlueTest.orgor by using the iPhone or Android app.Each entry also helps improve the lives of people with diabetes living in need. During each campaign period, the program's sponsors will donate $1 for each entry logged - up to $10,000 in each window - resulting in $30,000 donated to diabetes charities by the end of summer 2016.DHF know that exercise is important throughout the year. And they also know that diabetes charities need our support throughout the year, too. So get up and get active. Log the exercise and help us get to 110,000 entries before November 30th. Every time you log a Big Blue Test entry betweenOctober 14 and November 30th a $1 donation will be made by our program sponsors to one of two great diabetes-related nonprofits. Read more about the two charities that will benefit from your sweat: Meet the grantees.[...]



DPAC with Diabetes Connections and Stacey Simms

Wed, 14 Oct 2015 13:38:00 +0000

I had the great privilege of joining Stacey Simms in a conversation about Diabetes, Advocacy and DPAC. Just click below to listen in.

Diabetes Connections with Stacey Simms

DPAC - Diabetes Patient Advocacy Coalition 

Released: Sep 29, 2015
DPAC is a new effort to make it easier for people with diabetes to communicate with policy makers. Co-founder Bennet Dunlap explains how Diabetes Patient Advocacy Coalition works and how we can all take part. 

Read more at https://html5-player.libsyn.com/embed/episode/id/3826551/height/360/width/640/theme/standard/direction/no/autoplay/no/autonext/no/thumbnail/yes/preload/no/no_addthis/no/#GHJpPi83EkwpAtB7.99


allowfullscreen="" height="360" mozallowfullscreen="" msallowfullscreen="" oallowfullscreen="" scrolling="no" src="//html5-player.libsyn.com/embed/episode/id/3826551/height/360/width/640/theme/standard/direction/no/autoplay/no/autonext/no/thumbnail/yes/preload/no/no_addthis/no/" style="border: none;" webkitallowfullscreen="" width="640">