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ALS/MND Support Group Forums



ALS Forums is a support group community that provides answers, tips, friendship, care and support to people affected by ALS, MND and PLS.



Last Build Date: Wed, 21 Feb 2018 12:38:28 GMT

 



Silent Aspiration

Wed, 21 Feb 2018 04:45:24 GMT

We are four years in---why had I not heard of silent aspiration before today? Between November and January, hubby went through three rounds of...



Dental Issues

Wed, 21 Feb 2018 00:12:09 GMT

After a very uncomfortable and painful dental appointment to replace a 40-year old crown today, I decided I need to write another ALS information...



Georgia Tech Research Study - Caregivers of individuals with ALS in Atlanta, GA area?

Tue, 20 Feb 2018 22:48:12 GMT

Hi, My name is Susan Lee, and I am an occupational therapist and research scientist at the Center for Assistive Technology and Environmental...



Waiting Game! Very Frustrating

Tue, 20 Feb 2018 17:47:02 GMT

My father was recently (October 2017) “told” by two separate neurologists that he has ALS. He has frequent fasiculations in his legs, arms and...



Limbo and emg

Tue, 20 Feb 2018 15:22:24 GMT

Dear all of you in here! I Write you here for the 3rd time as I am still in the same situation where Im still in and out of doctors Offices With...



Need some help on weight gain and stomach collapsing when I lie down

Tue, 20 Feb 2018 10:50:00 GMT

Hello everyone. So a bit of background for me. I had some issues swallowing for over a year. I had an EMG in Oct 2017 that indicated diffuse...



My latest Emg and apologies in advance.

Tue, 20 Feb 2018 10:18:21 GMT

Hi. I realise I have posted a lot and asked a lot of questions so apologies. You have been so kind to answer. It is sincerely appreciated and I...



Newly diagnosed, need advice

Tue, 20 Feb 2018 05:09:36 GMT

My husband was diagnosed with ALS Jan 2018, onset symptoms started Feb 2017. He first had cramping in right calf muscle then foot drop. His right leg...



Update

Tue, 20 Feb 2018 01:47:49 GMT

Hello everyone, Just a quick update. Still no diagnosis or name for what is going on with me. Does anyone know if Baclofen suppresses the...



Other forum's for ALS

Mon, 19 Feb 2018 23:39:07 GMT

I just discovered Patients Like Me. A lot of helpful advice and tips.Does anyone else go to differ sites ?



hospice and trilogy

Mon, 19 Feb 2018 23:35:07 GMT

I'm looking into hospice. I need a trilogy 24\7 ahnd would have to switch companies. Nervous about this. Has anyone had this experience \



Sacred about symptoms and hoping to get feedback

Mon, 19 Feb 2018 22:29:45 GMT

Hi everyone, I'm a new member. This forum has been very helpful for me in recent weeks, and I was hoping to get some insight on my symptoms. I...



my poor harley

Mon, 19 Feb 2018 19:06:33 GMT

While riding my Harley, I swerved to avoid hitting a deer, lost control and landed in a ditch, severely banging my head. Dazed and confused I...



Does my dad have ALS?

Mon, 19 Feb 2018 05:10:18 GMT

2 Weeks ago one day at midnight we rushed to hospital because my dad couldn't sleep or feel his left arm because it was so numb.Then at the hospital...



On a Lighter Note

Mon, 19 Feb 2018 00:00:48 GMT

My husband truly loves me and has my best interests at heart. I was not offended in the least when he told me today that he would like me to see...