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ALS/MND Support Group Forums

ALS Forums is a support group community that provides answers, tips, friendship, care and support to people affected by ALS, MND and PLS.

Last Build Date: Thu, 14 Dec 2017 01:06:16 GMT


Scary Symptoms for 2.5 Years

Thu, 14 Dec 2017 00:10:17 GMT

EDIT: Should also mention I have been taking SSRIs for anxiety since last year's scare with the MRI. Hi everyone, I’m Amanda, a 25-year-old...

Atrophy and twitching at 20 years old

Thu, 14 Dec 2017 00:08:38 GMT

Hey I was havin some issues and symptoms that resemble als and I was worried. I hope you guys can help. About 2 or 3 months ago I noticed some...

Help me AlS symptoms

Wed, 13 Dec 2017 23:38:04 GMT

Im sure you guys see this all of the time but I really wanted to hear from people who actually have als. In june my tongue started twitching.. not...

Newly diagnosed

Wed, 13 Dec 2017 22:08:40 GMT

Diagnosed at Ralph H Johnson VA Medical Center on December 5th. 58 yo Navy veteran. Not a surprise as I have had some symptoms for the last year or...

ALS & Exercise Study

Wed, 13 Dec 2017 00:32:09 GMT

Looking for some advice

Tue, 12 Dec 2017 19:40:19 GMT

Hi Everyone, While I'm technically a new member, I have spent a lot of time reading on this website for several months now, and am grateful to...

End stages

Tue, 12 Dec 2017 16:49:20 GMT

It's hard to believe that a month ago my dad was still walking, eating and speaking normally, using his left hand/arm. His progression since then...

Drugs and supplements

Tue, 12 Dec 2017 03:32:16 GMT

All articles talk about drugs and supplements to help with strength and twitching but nobody says what they are. I’m getting frustrated with trying...

Recipe Sources

Mon, 11 Dec 2017 08:58:46 GMT

Hi Everyone, I was wondering if anyone has found any good sources for recipes for MND patients? I have been in touch with the local MND...

Improving the taste of water thickeners

Mon, 11 Dec 2017 08:55:56 GMT

Hi All, Does anyone know of ways to improve the taste of water thickeners? Or have some suggestions for some recommended water thickeners...

Worried that I might have ALS.

Mon, 11 Dec 2017 08:24:27 GMT

Hello, My name is Lauren and I'm 24 years old. First of all, my heart goes out to anyone suffering from ALS, and any family members as well. I...

beginning of respiratory failure?

Mon, 11 Dec 2017 04:03:40 GMT

I can't handle it... My dad has been coughing for about 2 weeks now. He starts at about 7pm and it continues on until about 2am. It's so difficult...

First to go, voice or ability to swallow?

Mon, 11 Dec 2017 00:08:57 GMT

Hi everyone, I have received an unofficial diagnosis and am losing my speech quickly, along with lots of respiratory weakness and breathing...

2 years symptoms - Neuro dismisses

Sun, 10 Dec 2017 20:54:46 GMT

Hi - I've had twitching for 2 years, initially in the feet arches and calves, now more widespread (arms, back, fingers). Slight feeling of cramp in...

What you must take care of after?

Sun, 10 Dec 2017 15:18:13 GMT

Hey guys, I am not there yet but I feel like my PALS is on his last decline. What things do I need to make sure I take care of afterwards?