Subscribe: Comments on Ryn Tale's Book of Days: Livin to the point of tears: Nothing Left to Bolus
http://ryntales.blogspot.com/feeds/7661325719268542631/comments/default
Added By: Feedage Forager Feedage Grade B rated
Language: English
Tags:
awesome awesome  awesome  cure  deep satisfying  eating  ellie eating  ellie  glad  gwendolyn foundation  host month  kids  month  sma  soul deep 
Rate this Feed
Rate this feedRate this feedRate this feedRate this feedRate this feed
Rate this feed 1 starRate this feed 2 starRate this feed 3 starRate this feed 4 starRate this feed 5 star

Comments (0)

Feed Details and Statistics Feed Statistics
Preview: Comments on Ryn Tale's Book of Days: Livin to the point of tears: Nothing Left to Bolus

Comments on Ryn Tale's Book of Days:: Nothing Left to Bolus





Updated: 2018-02-17T21:33:55.902-05:00

 



"soul deep satisfying" Indeed! Congrat...

2010-02-06T08:56:52.720-05:00

"soul deep satisfying" Indeed!

Congrats to all!

Barbara



Hi! My name is Sarah and I'm a long-time follo...

2010-01-16T17:03:15.194-05:00

Hi! My name is Sarah and I'm a long-time follower of your blog but a first-time commenter. I'm a college student who works with special needs kids. I also follow more than 200 blogs, and I'm sending a very special message to all the blogs I follow: YOU have the chance to be part of a miracle!

If you are a member of Facebook or know someone who is, please take the chance to do something incredible!

Chase Community Giving is awarding $1 million to 5 charities! The Gwendolyn Strong Foundation is working to find a cure for Spinal Muscular Atrophy - and they could use the money!

Fast Facts:
- SMA is the #1 genetic killer of infants under the age of 2
- 50% of those diagnosed will not live to see their 2nd birthday
- kids with SMA lose the ability to sit, stand, walk, talk, eat, swallow, and breathe
- 1 in 40 people is a carrier
- the National Institute of Health says that SMA is the #1 CURABLE disease if given research funding
- right now there is NO cure and NO treatment
- right now SMA is a DEATH SENTENCE

Want to change that? Vote for the Gwendolyn Strong Foundation on the Chase Community Giving app on Facebook! You have five votes to tell the world that you want a CURE for SMA!

Tell your friends and blog contacts - let them know they could be part of a MIRACLE - be part of a CURE - and give these kids a FUTURE!

Thank you!



Glad to hear she is keeping it up. You must be bea...

2010-01-12T22:32:14.914-05:00

Glad to hear she is keeping it up. You must be beaming at the table with her.
It is HUGE that she is eating and enjoying it.
Go Ellie.



Go Ellie! You have the most tenacious, and certain...

2010-01-12T18:32:35.015-05:00

Go Ellie! You have the most tenacious, and certainly the best, mama and dada in the world. Kathryn this is the best news, you made me cry :) Love Aunty Rie xxx



I am so glad that Ellie is eating! I'm sure th...

2010-01-11T20:17:08.097-05:00

I am so glad that Ellie is eating! I'm sure that you read this in all your research, but periactin is often used as an appetite stimulant in children with eating aversions. Perhaps you have gotten rid of the migraines and the eating troubles all at once. So exciting!



that's awesome!! so awesome! keep it up!!

2010-01-11T19:28:05.305-05:00

that's awesome!! so awesome! keep it up!!



Just let Penny know

2010-01-11T16:57:51.707-05:00

Just let Penny know



Cheryl - thanks! I will host next month -I haven&#...

2010-01-11T09:29:28.440-05:00

Cheryl - thanks! I will host next month -I haven't done it in ages. Would be happy to.



YAY! I am including your last post in this month&...

2010-01-11T01:01:56.140-05:00

YAY!

I am including your last post in this month's carnival b/c the theme is holidays and it is a GREAT new years post!

Here's to EATING IN 2010!

PS we need a host for next month...



Billie- I am glad about that - I have gotten so mu...

2010-01-10T20:49:53.139-05:00

Billie- I am glad about that - I have gotten so much hope from watching your little ones grow and thrive - so I owed you! ;-)

Hi Candace - thanks I will! The eating thing is a long road and just because she is eating now doesn't mean she will keep eating but one has to hope right? AND keep trying! WE have the best support team at Ellie's school and they made food fun again for Ellie.

MFA Mama! Congratulations on your wedding!!! And thanks for the support - I think I heard you over the ethers! video soon to follow. I hope you have a GREAT day tomorrow!!! Pictures please!



Okay so I'm getting married tomorrow and forgo...

2010-01-10T20:00:04.241-05:00

Okay so I'm getting married tomorrow and forgot that I'm not alone in the house when the kids are with their dad and just whooped like a crazy person and my fiance was like "um...?" and I had to explain, like a dork, that my friend-inside-the-computer's kid was OMG EATING and he looked at me like I had two heads until I explained. Then he just looked at me like I probably look at him when he tries to talk to me about WoW or something :) But that is SO FREAKING AWESOME! I've had a kid start eating after being g-tube dependent and YES to the soul-satisfying-ness of actually getting to FEED them interactively and have them participate. It's SO gratifying when they actually WANT to eat and ENJOY it after a period of not-eating and oral-aversion and I am SO pleased for you and Dave (and of course Ellie!) that the eating has continued! And yeah funny how reflux improves when there's actual swallowing getting the peristalsis going...GO ELLIE GO!!!



FREAKIN' awesome, Kathryn! Keep us updated on ...

2010-01-10T19:16:36.646-05:00

FREAKIN' awesome, Kathryn! Keep us updated on the progress. Those of us whose kiddos aren't are livin' vicariously thru Elli!WOOOOOOOO HOOOOO



Oh...sigh. This just makes me feel all warm and f...

2010-01-10T18:26:55.740-05:00

Oh...sigh. This just makes me feel all warm and fuzzy. Thanks and keep it up Ellie!!!!!!