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Preview: Comments on The Gimp Parade: Saturday Slumgullion #29

Comments on The Gimp Parade: Saturday Slumgullion #29





Updated: 2013-04-13T03:08:48.680-05:00

 



What else can I say. Swearing at the universe doe...

2007-02-26T10:24:00.000-06:00

What else can I say. Swearing at the universe does no good. And holding on to old hurts only hurts me and those I care about. So...



I knew you'd say that. ;)

2007-02-25T22:23:00.000-06:00

I knew you'd say that. ;)



"I think our childhood might have been much differ...

2007-02-25T10:30:00.000-06:00

"I think our childhood might have been much different if the docs had traded in their zero-seizure policy for one that left you less doped up and experiencing daily barbituate highs and lows. I'm your twin, and I didn't get to know you well until you took control of the meds. I don't know what that means for people who must rely on them, but I'm grateful you outgrew the need."

But then I wouldn't be who I am now. I probably wouldn't be so stubbon either, whether thats good or bad I don't know. I suspect I would have less trust issues than I do. But there's no way to tell so I tell the universe 'thank you for the experience' and move on or try to.



The link should be fixed now.Thanks, Moggy, for sa...

2007-02-24T22:51:00.000-06:00

The link should be fixed now.

Thanks, Moggy, for saying it so very well.

And sis, I'm glad you checked out the epilepsy article because I was wondering what you'd think of it. So much medical pressure was put on you to not have any more seizures, ever. I think our childhood might have been much different if the docs had traded in their zero-seizure policy for one that left you less doped up and experiencing daily barbituate highs and lows. I'm your twin, and I didn't get to know you well until you took control of the meds. I don't know what that means for people who must rely on them, but I'm grateful you outgrew the need.



The link to the NYT article on the girl and her au...

2007-02-24T20:14:00.000-06:00

The link to the NYT article on the girl and her autistic brothers didn't work for me, fyi.



"Ugh, yet another Autistic-bashing article.I'd lov...

2007-02-24T14:53:00.000-06:00

"Ugh, yet another Autistic-bashing article.

I'd love to see some of that stuff written from the non-NT-worshipping point of view."

Totally agreed. Growing up with my very NT sister was no picnic for me as an autistic person, but articles about autism and sibling relationships somehow never mention that.



The article on Epilipsy is right on about how peop...

2007-02-24T13:30:00.000-06:00

The article on Epilipsy is right on about how people react. Fortuately I 'out grew' it. Or more accuratly I told the doctors NO MORE(i was in my 20's).

I hadn't had a visible siezure in years the meds were making me ill and left me so doped up I couldn't learn or function. So we tried Depakote or was it Depakate? Anyway panic attacks at work are not a good thing. That was the last straw, I stopped all meds and doctors. And never regretted it.

I still wonder if there were some side effects that aren't obvious. Especially since the one that worked the best(zarontin) on me was experimental at the time, and going thru the FDA approval process. Phenobarbatol and Diamox were no picnic.(Those I got off of in High school).



Thanks for adding me to your links. I will certain...

2007-02-24T12:18:00.000-06:00

Thanks for adding me to your links. I will certainly repay the favor.

Your blog looks very interesting and I want to spend a lot of time reading here. I was surprised to see a disability carnival. I may have to check into that.



Ugh, yet another Autistic-bashing article.I'd love...

2007-02-24T02:28:00.000-06:00

Ugh, yet another Autistic-bashing article.

I'd love to see some of that stuff written from the non-NT-worshipping point of view. It might sound more like:

Justin and Jason wish their 14-year-old sister would stop wearing perfume -- or at least cut back. They tell her she stinks, have resorted to raiding her room when she's out seeing her doctor, and require her to turn over every scented product on the way to school, but little works. She annoys them with her chatter, and like all siblings they squabble, but there are deeper causes: the boys are typical teenagers, while their sister has neurotypical disorder. They worry she'll never stop being distracted by every "cute" male in sight enough to attract a partner, never gain the attention span or dedication for a career, never control her perfume obsession or telephone chatter, never gain significant sensory strength -- that she'll never be "normal" enough to avoid having to rely on them, and that makes things weigh on them far more.

--

I personally don't like bad odors, and wasn't thrilled dating one NT guy with hygiene issues. Don't get me wrong there. But I also know that plenty of NTs of all ages (especially teen boys) refuse to wear deodorant, and it isn't pathologized in an New York Times article, nor is wearing it "enforced" at that age.

I didn't wear deodorant until I was about 15, either... The reasons? First, I was just not mature enough -- that came with age, just like it does for NT kids. More importantly, I didn't know any existed that didn't stink offensively enough to make me feel physically unwell and feel disgusting enough to make my skin crawl.

I have to wonder whether their parents have actually asked any Autistic adults why the boys refuse the deodorant, and whether any of us started using it later in life... Somehow I doubt it. It wouldn't shock me if they didn't bother asking the boys and instead just figured they're being non-compliant because their brain is broken.