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Preview: Comments on Fit of Pique: Growing Up with Sky Sky's my sister, she's three y...

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Updated: 2017-11-22T03:08:44.352-06:00

 



This is one of the best and most intelligent inter...

2007-01-15T09:34:00.000-06:00

This is one of the best and most intelligent interpretations of the Ashley Treatment I have come across yet sadly a minority one. Do sign up to UK charity Scope's 'Defend disabled children's rights' pledge. Enough names can help ensure it will never happen over here to disabled child...http://www.scope.org.uk/childrensrights/



I have to respond to what Miz said, though she del...

2007-01-08T15:50:00.000-06:00

I have to respond to what Miz said, though she deleted it. It was to the effect of "You have no say unless you are a caregiver." The fact is, I am a caregiver, mostly of someone with intellectual disabilities, but on rare occasions I do help out people with physical disabilities if they need it. Just because someone's disability is considered "burdensome" or that caregivers are overworked, is not an excuse to violate the body politic of an individual. The rights of a caregiver do not exceed the rights of the disabled. If someone is not prepared to care for a special needs child, they should think seriously before having children, full stop.




2007-01-08T00:26:00.000-06:00

This comment has been removed by the author.



Thanks for sharing your journey with your sister.

2007-01-07T19:32:00.000-06:00

Thanks for sharing your journey with your sister.



I've heard that "it was so hard" thing from siblin...

2007-01-07T11:10:00.000-06:00

I've heard that "it was so hard" thing from siblings too, but really, lots of things about growing up are hard. A high school friend of mine grew up with an autistic sister, the only thing we ever complained about was having to babysit, and that was just because we were teenagers and wanted to go hang out at the billiard hall and smoke dope. By the way, thanks for pointing me towards your blog.



I read your comment on the brownfemipower blog and...

2007-01-07T07:45:00.000-06:00

I read your comment on the brownfemipower blog and was so relieved to see someone else, (for the first time that I had read) discussing the '3 month old mind' claim that's been made about this girl.

I enjoyed reading about your sister. It's great because all to often, when siblings of disabled people talk about their childhood, they whine about 'how haaard it was, how Mommy and Daddy had no time left over for them, blah, blah.' Though to be honest, that sort of attitude seems to be encouraged more in autism than other disabilities.

I'm sure my non-disabled son and daughter will continue to have a good relationship with their autistic brother as they all grow up. They wind each other up as all siblings do, but really love each other and are great friends.

I wrote a post about this. I usually only write about what the children are up or autism issues, but this struck me as important for anyone concerned about the rights of women and disabled people.

There are some great comments from Kassiane at the end too.



Thanks Stephen, I appreciated the link to your pos...

2007-01-06T23:08:00.000-06:00

Thanks Stephen, I appreciated the link to your post as well. It's horrifying to see that people with disabilities are still being treated in this way this day and age.



So very well said, thank you. And here is an ex...

2007-01-06T15:01:00.000-06:00

So very well said, thank you.

And here is an excerpt from Say It Ain't So on the Planet of the Blind.

When we imagine that by means of surgery and drugs that we're doing a good thing by making another person's body and life fit our own convenience we are essentially confusing utility with ethics. Ashley, who cannot speak for herself has been rendered an object in this process. Those in the medical ethics and disability communities who see a connection between this procedure and eugenics are in my view not wrong. I'm very troubled by this story and I sense that my gut reaction is truly the ethical position.



Oh yeah, I have to add, "obviously" is the wrong w...

2007-01-05T18:27:00.000-06:00

Oh yeah, I have to add, "obviously" is the wrong word about Sky not having sex, I just don't think she knows what it involves. But who knows what happens in a Snoezelen room! And a number of intellectually challenged adults do have sex.