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"I find penguins at present the only comfort in life. One feels everything in the world so sympathetically ridiculous; one can't be angry when one looks at a penguin." - John Ruskin

Last Build Date: Tue, 07 Nov 2017 17:33:28 +0000


November? How did we get here?

Tue, 07 Nov 2017 17:33:28 +0000

The short version: I’m not doing very well. The long version: Care home didn’t improve much. We put in an official complaint before I left and heard nothing. When we’ve got the energy, we’ll have to complain to social services and possibly the CQC. Coming home was horrible as I wasn’t well enough to travel, [...]

Level 31

Sat, 29 Jul 2017 23:26:29 +0000

An incomplete and out of order summary of what’s been going on the last few months. I had a shower! It was awesome. It still takes way too much out of me to be able to have one regularly. I went out to vote in the General Election. I like our Labour MP so I [...]

Blogging Against Disablism Day

Mon, 01 May 2017 19:08:59 +0000

Nor well enough to blog myself this year, but the blog posts are good and always make me think, so I’m putting the link below so I remember where to go tomorrow when I’ve forgotten again 😛

How Is It April Already?

Mon, 10 Apr 2017 09:00:17 +0000

Bullet Point update cos easier: I got my PIP award. Standard care, no mobility. I apparently only need aids and adaptations (not carers), as I can type on my tablet. I have no communication difficulties despite being non-verbal during the assessment. I can somehow walk more than 50 metres (but less than 200) despite not [...]

My Identity, Pronouns and Titles

Wed, 08 Feb 2017 02:37:43 +0000

I’ve mentioned before that I’m genderless (don’t identify as either male or female, and have no gender at all). There are other names for the same thing such as agender (which my brain automatically turns into agenda so I don’t use it) and non-gendered, but they all mean not having a gender at all. The [...]

Goals for 2017

Wed, 18 Jan 2017 23:05:49 +0000

I’ve decided not to set new year’s resolutions, as my health means that I’ll struggle to keep them and it might not be my fault. What I’ve decided to do instead is make a list of goals for the year, and hopefully achieve some 🙂 Have a shower at least once every 2 months. That [...]

Teeth Sorted 

Wed, 11 Jan 2017 16:06:05 +0000

Yesterday I went into hospital to have my teeth sorted under a general anaesthetic. Considering I have severe ME, it went about as well as it could have. The ambulance with the stretcher was late, but we were expecting that and I was second on the list because we knew I’d not be getting in [...]

2016 in Review

Sat, 07 Jan 2017 00:28:17 +0000

Every year since I started this blog, I’ve done an end of year survey. This year, I finally realised that it’s my blog, so I can change the questions to ones more suited to me. I’m a bit of a silly sausage for only just realising that 😛 2016 was definitely an eventful year. 1. [...]

Happy New Year!

Fri, 06 Jan 2017 22:54:14 +0000

Happy New Year! I hope everyone had a good winter holiday season, and that this year will be good to you. I had a lovely time just before Christmas and on Christmas Day, but overdid it a bit and so it’s taken me a couple of weeks to recover. Annoying but nothing I’m not used [...]

Brain broked but stuff happened

Sat, 12 Nov 2016 07:12:59 +0000

Physically I have got better. Cognitively I have got worse. This is not unexpected but very annoying. I am struggling to understand even simple things like my bank account and emails. Because of this, Johan is now my Appointee when it comes to the DWP. This means he’s responsible for contacting them, filling in forms, [...]