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Preview: Comments on The Gimp Parade: Like a lion -- A rant

Comments on The Gimp Parade: Like a lion -- A rant





Updated: 2013-04-13T03:08:48.680-05:00

 



Skylanda: I have seen just catheters for sale onli...

2007-03-15T02:26:00.000-05:00

Skylanda: I have seen just catheters for sale online somewhere. I guess there are people out there that use a "clean" suction method instead of a sterile one. But the RTs at rehab were very insistent about sterile technique and all the parts of the kit are used at my house. My nurses, in the past year, have called in sick some days to avoid infecting me, but have also unwittingly worked here while coming down with bad colds and evil stomach viruses, none of which I have caught in the past year. In my case, we must be doing something right because in the case of the stomach flus, everyone else my sick nurses knew got violently ill.



Hey Blue - I'm not sure if my brother & SIL ever p...

2007-03-08T18:37:00.000-06:00

Hey Blue - I'm not sure if my brother & SIL ever pursued the microwave pseudo-sterilization option...it was one of those things that got mentioned in passing when I happened to be sitting in the room on the rehab floor, and I'm not sure they'd even remember it if I asked. I suspect they probably haven't run down on supplies yet because so much of her first month "at home" was spent back in that emergency trip back to the ICU, as you may recall.

I'm not sure about the plastics degrading in the microwave...I mean, I certainly don't eat out of microwaved Tupperware, but I think that most of America does. I'd be more worried about microwaved plastics in food than something going down the throat for a few seconds, but since it's your throat, you're the best judge of that, IMO...

One thing that drove me crazy about those suction kits was the utter waste - every last one of them came with sterile gloves and some little plastic-and-cardboard pot for putting saline in that bro and SIL never used. Frankly, with their own kid, they don't use the gloves. So two thirds of every kit gets thrown away because they can't get kits that just include the suction tip alone, and Medicaid will only pay for a limited amount because they don't want to waste money. And the head on my shoulders continues to spin at that logic...



Why am I suspecting that the same minds are at wor...

2007-03-07T12:54:00.000-06:00

Why am I suspecting that the same minds are at work on Medicare and the VA?



Skylanda: Her too, huh?Aren't you supposed to avoi...

2007-03-06T21:41:00.000-06:00

Skylanda: Her too, huh?

Aren't you supposed to avoid eating out of plastic that's been in the microwave because it contaminates the food with its plasticness? Guess that doesn't apply to catheters that go into the windpipe.

I've gotten similar suggestions. In what sterile place are these newly zapped catheters supposed to be kept? When the rehab RTs trained me and my parents they were absolutely clear that sterile is paramount in importance. I don't understand why this particularly vital piece of equipment is so limited by Medicare. And it's weird it took a year for it to kick in for me, eh?



Blue Lily, you're gonna keel over and die when I t...

2007-03-06T21:01:00.000-06:00

Blue Lily, you're gonna keel over and die when I tell you this, but ya know my niece who's in a similar situation machine-wise (and insurance-wise) as you? Those who are managing her respiratory issues sympathetically suggested that her parents get a microwavable sterilization kit sold for use with breast pumping equipment and start re-sterilizing this kind of stuff themselves so it can be re-used a time or two. Yup, that's the best answer they had given the Medicaid situation as it stands now.



Another thing I didn't even mention about this thr...

2007-03-05T13:35:00.000-06:00

Another thing I didn't even mention about this three per day situation is that at times I have multiple nurses training on this limited amount of supplies. If someone is learning the rather complicated coordination of keeping one hand and everything it touches completely sterile while using the other hand to touch nonsterile things like the water bottle, the suction machine and tubing, and my trach, then they need the freedom to screw up and get a safe kit without depriving me of a kit later in the day. There've been whole days when several new nurses are training in suction. Three per day is a particularly ridiculous minimum under those circumstances.



*Growl* (Sarcasm to follow, please don't take lit...

2007-03-03T13:10:00.000-06:00

*Growl*

(Sarcasm to follow, please don't take literally)

We're a great *burden* you know, so anything that provides ease or comfort...absolutely out of the question...

A "once a year" waiver would make sense...but once a package???

Pfft.



New Mobility magazine did a story last December on...

2007-03-02T23:22:00.000-06:00

New Mobility magazine did a story last December on urinary catheters and Medicare only paying for four caths per month. I learned a lot from that article, both about urinary tract health and government policies.

http://newmobility.com/review_article.cfm?id=1226&action=browse



First, my sympathies to your bruised and battered ...

2007-03-02T19:10:00.000-06:00

First, my sympathies to your bruised and battered family member.

And with that out of the way....grrrrrrrr. Insurance programs of all stripes seem to have it in for routine supplies. I have read of similar problems faced by people with epidermolysis bullosa, that the bandages they need to cover their wounds are simply not covered at all. What sort of dollars and sense reasoning ends up concluding that infection and hospitalization is the best option?



I think it's universal. The family next door has a...

2007-03-02T08:30:00.000-06:00

I think it's universal. The family next door has a diabetic 2-year-old. They were allotted 2 (or maybe 3) testing strips per day - exactly the same as a 40-year-old. The child, on the other hand, went through six or more a day, because children's metabolisms vary so wildly.

Best of luck getting them to approve what you need.



A biology teacher of mine in high school told us a...

2007-03-01T23:30:00.000-06:00

A biology teacher of mine in high school told us a similar story of a diabetic student of his in the 70s who had had to play the waiver game every month ... you would think we'd be past this by now! Good luck.

And thanks for adding "Ook!" to the parade.