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Preview: Comments on Braska Bear: Mommy report: Update, part 1--Feeding

Comments on Braska Bear: Mommy report: Update, part 1--Feeding





Updated: 2016-10-03T07:11:11.658-05:00

 



I'm here if you have any questions about KKI. ...

2009-09-29T08:57:08.645-05:00

I'm here if you have any questions about KKI. I saw your comment on my blog. It is a hard road but not an impossible one, just takes tons of PATIENCE and determination. Don't give up, fight for what you know she needs. We had to fight our insurance over a year to get here but finally got in. It's going well, of course they're not miracle workers but he's making progress and they know what they're doing. If I had any advice before coming to one of these places I would say get the reflux under control, work on chewing skills, and drinking skills. That's where our main issues are. They use a behavioral analysis system that's proven. I also looked into that one overseas but it was too far obviously:) Warm wishes and blessings with your little one. My email is kariabridges@gmail.com if you ever have any questions.

Kari



Feeding issues are so hard. Trust me... I get it....

2009-09-25T19:40:07.817-05:00

Feeding issues are so hard. Trust me... I get it. It's hard to explain to anyone who hasn't been here that it just plain stinks to not feel like you can feed your own child. And it's really hard having to worry about controlling every environment when it comes to feeding time. We haven't been at it as long as you and Braska, but we definitely have a long road ahead too. You're doing great!



Wishing you the best with this. Do you read the b...

2009-09-25T12:32:20.759-05:00

Wishing you the best with this.

Do you read the bridges Bunch? Carsten is younger, but he is currently at the KKI Institue (Maryland?)?

http://thebridgesbunch.blogspot.com/

Also, Graz University Hospital, where Vince has a lot of his therapies is also one of the world famous places for getting kids to eat. There was a movie made from here that was called something like The Girl Who would Not eat. I have not seen it, but mny who come here have.

About two years ago I got in touch with a lady from New Zealand who was coming to Graz to do the program. Her son has DS but he also had some epileptic issues. I am not sure how that affected his eating, if at all. Anyways, he was over three when he came. He ate NOTHING before. They ended ups taying for about 5 weeks and he ate some puddings, and some lighter texture foods by the time they left.

If you want me to, I will dig through my emails and find her email address?