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Preview: Online Breast Cancer Forum: Research Information & Resources

Online Breast Cancer Forum: Research Information & Resources

Our online breast cancer forum offers helpful information for cancer patients and their loved ones. Explore to research treatment methods and compare stories.

Published: Tue, 20 Mar 2018 00:00:00 GMT

Last Build Date: Tue, 20 Mar 2018 00:00:00 GMT


Metaplastic Triple Negative Breast Cancer

Sun, 11 Mar 2018 00:00:00 GMT

Hi everyone. Just had 2 different turmors removed, one Metaplastic, the other CCIS from one breast. Radiation is planned.  The also want to do chemo, but the info I have found says Chemo & Hormone therapy are not effective. Surgeon recommends the radiation, but says don't let chemo people push you into anything, and that I should advocate for myself. Has anyone been in this spot. And what helped you to determine the correct path to take. Thanks Francez

38 yrs old recently diagonsed with idc

Wed, 07 Mar 2018 00:00:00 GMT

Hello, my name is Trinity, I am now 39 years old and have been recently diagnosed with invasive ductal carcinoma of the left -sided breast, grade 3 IDC of 1.8 cm, negative margins, no lymph node involvment or LVI, with a triple negative pathology. I also underwent a left breast mastectomy and sentinel lymph node biopsy on January 24th,2018. 6 sentinel lymph nodes were clear. Currently my case is in review with the tumor board and they will be presenting me the treatments they suggest for me soon I hope. AS OF FEB 20TH,2018 I WAS TOLD I AM CANCER FREE!!!! BUT............. also at this follow up appointment NOW  THEY'VE RECOMMENDED CHEMO and RADIATION, anyone else think there's a problem with this? Or in the same situation? What did you choose to do? How we're you feeling at that moment? Me, I just started balling my eyes out! I was so sad, so much has been going on in my life. I'm recovering well, but I can defiently say I've had a few "moments" already. But more so I can't seem to get out of my own head lately. Overall, mind you I think I've done pretty dam well considering. List of events: -diagnosed with BREAST CANCER in Oct and by the end of the month had to quit my job,  almost lost my father who was hit by a car in Nov; he broke his pelvis, ribs, staples in his head, amongst other injuries that doctors had said he may never be able to walk again. Well to our surprise he was able to go home just in time for his 59th birthday in Dec. With a back brace to help him walk . To date he's still recovering. Has a bit of brain damage and emotionally messed up a bit but hopefully time will tell. He's doing very well for the position he's in at this moment. Christmas has arrived, now I've used my savings, to get threw the hoildays and credit cards to pay bills and such. Oh.........I didn't mention, I have 3 daughters ages 18,15, and 10. January my youngest daughter turned 10, just before this she figured out that I had cancer just by chance one day, she found my Setinel node biopsy and mastectomy booklet. Not long after that we then burried one of my grandfathers at the age of 85.  Wait there's more........mind you this whole time  lmy husband, our children and myself also live with my husbands grandparents ages 86 and 92,  his grandfather has been up and down the past few years. That in it self hasn't been easy. Who cared for him, my our home and with our deepest sympathy's on Feb 17th, 2018 he passed away. We then had to wait a week to lay him to rest. Now here we are.....AND I'M IN MY OWN HEAD MORE THAN EVER.  I'm not the person I used to be and I don't like it!  So this weekend I'll be attending the Landmark seminar. Here's to the weekend and me finding myself again.

Triple Negative IDC

Thu, 01 Feb 2018 00:00:00 GMT

Late last year a routine mammogram discovered a 8 mm mass in my left breast. From all accounts I was very fortunate - small tumor caught early. Earlier this month I had a lumpectomy and it was a breeze. Surgeon called to let me know that no cancer was found in the lymph nodes so naturally I was over the moon. Today I met with the oncologist expecting to start radiation in a few days only to be told that while my cancer was caught early that I was diagnosed with a highly aggressive form of cancer known as triple negative. The tumor nearly doubled in the weeks between the biopsy and the surgery and now I will require chemo on top of radiation. My head is spinning and just wanted to reach out and see if anyone has any experience with this type of breast cancer? From the minute I was diagnosed I was very positive and upbeat about my prognosis mosrtly due to the fact that when I asked the surgeon about chemo she said that it would not be necessary but today I am falling apart. If anyone has anything to offer in the way of experience with this type of cancer I would love to hear from you.

Stage IV Breast Cancer

Fri, 02 Mar 2018 00:00:00 GMT

Hi everyone. I'm new to the group so please bear with me if I don't know the protocol. My wife was diagnosed with Stage 3c Lobular breast cancer in 2013 and was treated with the usual mastectomy, chemo and radiation. Three years later(2016) it returned having metastised to the peritoneum, retroperitoneum and bones. She has been on Ibrance for 1.5 years.Our scan this week shows that it has progresed to the liver and spine. Her oncologists is talking about switching her to another type of chemo but we seem to get evasive answers from her doctor when we ask about prognosos and survivability. My wife has stated that she is getting tired of all the treatments, blood work and doctor visits. I am doing everything I know to keep her spirits up. Can someone please share any information about what her likely prognosos is? I'm trying to get a straight answer so that she and I can plan for the future. Sorry if I didn't work my questions correctly, it just tends to be a little emotional for me.


Wed, 06 Dec 2017 00:00:00 GMT

New to this site. I was searching for any help with those like myself who are on Arimidex. I am in the 2nd battle with breast cancer, having had a second mastectomy on 12/6/2017. First BC was in 2006 and was not put on any inhibitors, as I was hormone receptive tripple negative. This new BC is hormone receptive positive. I too am experiencing bone aches, mostly in my knees, shoulders and jaw bone. I have a bone density test this week, and I'm hopeful I can remain on this drug. It's a struggle for sure ladies, so try if you can to hang in there. My doctor says it can take a few months before your body tollerates this. I will keep you all posted.  Blessing To All 

new calcifications on screening mammogram

Tue, 12 Dec 2017 00:00:00 GMT

I'm 42 and have had 2 normal mammograms in the past. However, last week I had my 3rd mammogram and received this finding, "There are calcifications with regional distribution seen in the posterior upper outer quadrant of the right breast." From what I've read, regional distribution is most likely benign, but I've seen a couple websites quote 20% and 26% chance of malignancy. I'm trying to find a document that gives the chance of malignancy for NEW calcifications. These were not there last year, which has me very concerned that I'm in that 20-26%. Thanks in advanced.

Anone not do any treatments for breast cancer?

Mon, 08 Jan 2018 00:00:00 GMT

Hi:  On my breast cancer I never received any papers telling me just exactly all I should know about it only what the doctors have told me while setting in their office.  I don't want surgery or chemo nor the pill or the cancer killing cell drugs. Is there anyone out there that took things like vitamins, or used spices to deal with their cancer.  If so, what did they use and what has been the effects on the things they drank or took in the way of different homopathic things or whatever you would call it.  elderlyone

I've got stage 4 breast cancer

Tue, 13 Feb 2018 00:00:00 GMT

Hi I am new to this but I am goin to share my story with you .i believe I need ppl to talk to I feel all alone, I've been fightin this since 2003 it's been long road I just need some support from other men or women goin through same thing .its metstastic bc stage 4 found under my arm in lymph nodes and to my spine .i feel depressed everyday I'm alone my husband left me when I got sick , I got more bad news so I had mri , I will find out what is goin on tomm as far as treatment options I suppose .

Radiation and chemo amounts

Tue, 23 Jan 2018 00:00:00 GMT

Hello Everyone, I was diagnosed with stage 2 breast cancer 2 months ago. I will do my 4th round of chemotherapy this week. I have noticed the lump has shrunk quite a bit and would not be surprised if it goes away by this next round. I am planning to discuss with my doctor if we may decrease the rounds, she wanted to add another drug to my last 4 rounds but I don't think this is necessary. I know they want to get rid of it but I am worried about the long term damage. I also have been reading the posts on here about the side effects of radiation and surgery which is making me worried as well. All my doctors tell me is that there will be fatigue and a sunburn...I am not sure how much I need but they say lumpectomy and 4-6 weeks of radiation every day, it will be aimed directly at the tumor and not the whole breast. Any tips on how to make sure we aren't overdoing it and causing more harm than good?

Flaxseed Lignans, any truth to alternative methods?

Mon, 08 Jan 2018 00:00:00 GMT

I've been hearing a lot about flaxseed lignans as being useful for fighting/preventing recurrence of breast cancer. I linked a page below as an example. Has anyone had any experience with this?                                                                                     


Mon, 15 Jan 2018 00:00:00 GMT

Hello, I'm new to the forum and I was wondering if I could get some advice. I noticed that for the past two months I've had an urine odor under my breast. The only thing that gets rid of the odor for a bit is Selsun Blue Medicated Shampoo w/menthol. I've tried to research it but did not come up with anything promising. My research showed it could be some kind of kidney cancer or breast cancer. Really appreciate the help in knowing what it could be. Thank you!

Need advice on breast surgery!

Wed, 13 Dec 2017 00:00:00 GMT

I have been diagnosed with breast cancer 7 years ago. I had undergone mastectomy surgery two years ago. Currently, I'm under complete remission of cancer. I'm happy with the result. My oncologist said that I have been strong throughout the whole procedure. He advised me to take proper rest for a while. Last day, I went for a shopping with my mom and everyone was staring at my boobs. It's very obvious that I had breast cancer. I hate the stares. I have heard that people who had breast cancer consider breast implant to regain the boobs. One of my cousins suggested undergoing saline breast implants from a clinic in London, Ontario ( ). But I have heard that a rare type of cancer is linked to breast implants. It's not similar to breast implants but it is known as lymphoma, which is the cancer of immune system. According to the latest survey, the number of women asking for breast implant removal has increased. Is that true? What might be the main cause of this lymphoma? I have just recovered from breast cancer and I don't want to take any risks. Is it safe to undergo breast implant procedure? How was your experience after the complete remission of cancer? Are you able to enjoy your life like others? Any advice is highly appreciated. Thanks!  

My mom was diagnosed, looking for a little support.

Mon, 08 Jan 2018 00:00:00 GMT

Hello all of you great people! My name is Simone and I'm so excited to find this great forum! I'd love to connect with anyone who went through this bad part of life and hopefully, share some experience. I am 22y old and my mom was diagnosed with cancer that has pretty much spread throughout her entire body. Have you ever had one of those bad dreams where it feels like you are trying to wake yourself up? Sure you did. That's how I feel right now. Like I'm drowning. All of this feels surreal, I'm still pretty much in shock I guess. But at the same time I've never been so scared in my entire life. They started chemo right away and she has already lost her thick long locks of hair. Ugh. But, the hope remains, I think. As long as she's alive, we're gonna fight this thing to the end. I'm exploring natural solutions, testing them with my mom and we've already found some pretty interesting stuff, so fingers crossed. I'll share my findings and updates here, and hopefully someone will benefit from my findings. If anyone here feels compelled to talk to me, please do. I'd love to chat with you. Take care and never, ever lose hope! Yours truly :)

What doesn't kill you, makes you stronger. Do you agree?

Mon, 08 Jan 2018 00:00:00 GMT

I just saw a music video with a focus on "What doesn't kill you makes you stronger." It got me thinking. I used to believe this was true but now I just don't know. I mean, looking back on the struggle I've gone through to help my mom with her cancer, yes - there's truth in this cliche. One must never give up, no matter how hard it becomes. As long as you're alive, you have to fight. No matter what. On the other hand, it's much harder to cling to those words when we're in the thick of an issue. But that's just my humble opinion. So, what are your thoughts on this? Do you agree or disagree? Take care!

Rad 5 - Male 23 - Breast mass suspicious

Sun, 07 Jan 2018 00:00:00 GMT

Does anyone know what the chances are for a 23 year old male having breast cancer?  Last year they diagnosed something else.  Has anyone else (male) had a Rad 5 and the biopsy came out normal?  I am just so worried about him.

Pain 14 yrs after mastectomy and reconstructive surgery

Wed, 03 Jan 2018 00:00:00 GMT

Its been 14 years since my mastectomy and reconstructive surgeries from stage 4 breast cancer. I had a modified radical mastectomy, chemo and radiation and a new born baby. I was diagnosed at 23 years old. I've always had some pain and I could never lay on my left side offer surgery, but over the years the pain has gradually gotten worse and I learned to cope with the pain with out drugs except otc pain relievers. Now it seems the pain is getting worse on a daily basis. I feel like like I'm hanging on to a rope and I'm ready to just let go. My family doctor doesn't know what to do to help me and I don't know what kind of doctor can help me. I have cords under my arm. My shoulder has dropped. The muscles on the left side of my back are locked up. Now my neck is giving me problems and I feel as if the left side of my body is slowly been crushed. I need advise asap. Can someone please help me figure out where to go from here.

RE: invasive ductal carcinoma

Wed, 29 Nov 2017 00:00:00 GMT

I'd like to here others journeys with the same kind of breastfeeding cancer. If you could please share with me it would help. Thanks

Breast cancer and shingles and a smell

Thu, 28 Dec 2017 00:00:00 GMT

Hi:  I now have breast cancer since late August, 2017.  Prior to my breast cancer I did have Squamous Cell Type II skin cancer on both my left inner leg and on my forehead.  Before I had the skin cancer removed I was diagnosed with right side Breast Cancer.  I believe the Squamous cell cancer gave me the breast cancer.  I feel I have now Inflamatory breast cancer.  Which means it has spread to other parts of my body.  The oncologist claims that is not true without checking it out.   Nothing has been done about the breast cancer due to my getting shingles 3 weeks ago.  My breast cancer is a small one.  Have had lots of problems with the shingles.  It first came on just as a large round spot about 2 inches around on my lower part of my breast.  Looked like what Mastitis looks like.  The article said that sometimes this is misdiagnosed for Mastistis when it is really Inflamatory Breast Cancer.  This round inflamed area was really red with darker red around the outer edges.  A few days later then there was a small red bump or pimple looking thing on my area just below my breast.  As the days went on then it got worse more raised bumps.  At that time I had an appt. with my oncologist and he confirmed what the surgeon had thought I had the shingles.  The surgeon put me on an antibiotic for 10 days.  The shingles have not looked like regular shingles nor have they festured or broken open like shingles would normally do.  My breast was heavy, my nipple itched, my left armpit felt swollen and sometimes had quite an odor for a while more so  before I got the shingles and is the same today. Now, 3 weeks later the shingles are just as bad as ever.  My breast bothers me to the point where I have to go and take Tylenol to stop the  discomfort.   I notice I have a very odd smelling odor from this area where the shingles are.  If I pull my t-shirt away from my body I can smell it and can't describe what the odor smells like.  Not a good smell.  I read a lot of articles on the site concerning the smell of cancer.  I thought it was from the shingles.  Perhaps it is but it really bothers me that it probably is from my cancer.   I have diabetes, heart trouble and cancer plus the shingles that hopefully will clear up in a week or so.  It claims that most shingles will clear up by six weeks unless you are unlucky and have them for months.    I noticed ever since I was first diagnosed with the skin cancers my two cats have been even more loving.  For the past week after I noticed that odd smell coming from around the area where the shingles are on my breast and the area below  the breast my little dog has been acting really strangely.  She will come and jump up on my lap and usually if I make her get off she will go off and do her thing but for about a week now she has just kept right on jumping back up onto my lap for several days now.  It has been since I noticed this bad odor coming from the area where the shingles are on my breast with the cancer that the dog has acted so differently. I have felt the cats know I have cancer now because they come and set on my lap a lot during the day and eveing moreso than ever before.  I realize now my dog also knows from how she has acted here this past week.  Just wanted to get this message out as I think I have inflamatory breast cancer which has spread to other parts of my body.   Regardless of whether anyone wants to believe it [...]

Hard breast following radiation

Thu, 10 Apr 2008 00:00:00 GMT

I had DCIS with surgery followed by radiation almost 5 years ago.  My breast has formed into a very painful and hard mass and my doctors have found no more cancer but say very little about how it happened or what can be done.  It cannot be pressed on at all and basically hurts most of the time.  Has anyone else had this happen to them and what if anything was done for you?  Apparently it is not a common occurrence.  Would appreciate hearing from you...kelley

Invasive lobular carcinoma diagnosis yesterday. Terrified

Fri, 08 Dec 2017 00:00:00 GMT

Hi, I'm 38 years old. My husband found something that felt weird in my left breast and I went last week and had a mammogram and ultrasound. The dr ordered a biopsy for the following Monday. I was already scheduled for a hysterectomy this past Tuesday which went well! My Dr called me yesterday and gave me biopsy results. Invasive lobular carcinoma. Sounds like an alien invader. I'm just trying to get answers. I meet with surgeon in one week. Wow. This is going to be a long week. Especially since I'm stuck at home recovering from the hysterectomy! Any advice or knowledge would be greatly appreciated :) Thanks, Steph Kemp

Surgery, recurence and survival

Fri, 22 Dec 2017 00:00:00 GMT

On anther website thats very dear to me i bumped into the follwing youtube video about a doctor at MIT linking recurrence rates to surgery, i found it interesting because i have read a lot of stories of women with stage 1 or 2 turning into a stage 4! Would love to your thoughts!

Stinging in nipple and breast along with white nipple spot

Thu, 14 Dec 2017 00:00:00 GMT

6 months ago I was in the ER and got a chest ct scan which found a mass in my breast. I had actually known about the mass, but I am 27 years old and had it since a teen. A lot of friends have had similar masses and gotten them removed. Long story short, I got an ultrasound on it which the doctor said didn't look cancerous. However, I have had terrible pain and stinging in the breast with the mass. I have noticed a small white spot and I have no idea how to explain it but it really hurts. Here are links to the images. I honestly cant find ANYTHING like this on the internet, my nipple likes "normal" besides this - maybe slightly dry but thats it. Any thoughts would be really appreciated!

Rib pain months after radiation stops

Thu, 19 Feb 2009 00:00:00 GMT

Hi, I had a lumpectomy last Jan followed by 6.5 weeks of radiation.  I am now taking Femara with the usually side effects but about 8 weeks ago I started experiencing pain under my left breast in the rib area (same side as the bc).  As a precaution my doctor sent me for a bone scan which is negative but still no diag for this pain.  Anyone out there with a similar situation?  Thanks


Sun, 17 Dec 2017 00:00:00 GMT

I am a breast cancer survivor ofnearly 17 years,recently l have noticed a tiny amount of blood from the nipple of the affected breast,l have an inverted nipple,always have had,anyone got advice?

Invisible Lump between left breast and armpit

Thu, 23 Aug 2012 00:00:00 GMT

i went to my doctor about a lumb the size of a nickle between my left breast and armpit.. when he felt it he immediately told me i was to go in for a mammogram w/dignostic... they called me with the appointment the next day - when i got there we did the mamo first which showed i discovered i have dense breast tissue as the whole view of the breast was white with very little contrasting black, after a few moments they took me back for an ultrasound - the tech picked up the nodes - which she said looked fine, then asked me about the lump, where it was located, what it felt like, etc. So i pointed it out and told her it seemed to be deep inside not just right under the skin and when i raise my arm - it goes further down. She felt it and was startled at the size, so she started trying to capture it - at one point she said got it - but then moved and it was lost - she brought in the radiologist who then felt the lump, looked puzzled and attempted to find it.. no luck - so i was sent home with an ALL CLEAR come back in a year and a pamplet on dense breast tissue. Is there a chance that this was not picked up on the ultrasound because it is hidden under the muscle? or just a phantom lump that can be felt not seen? no one seems to be worried but me. Since finding it, i am now having pains which shoot from the area of the lump into the breast and nipple area, over the last week i have started to feel extremely tired, edgy due to the pain just below my left shoulder blade and wraping around the left rib cage to just under my breast and as of today .. i have this nagging uncomfortable pain between the shoulder husband has even started asking me if i am ok inside. Am i just being paranoid - i do not wanna go for more tests and made to feel like i am being a hypochondriac. i cannot see a specialist unless my primary refers me - so how do i get him to send me to specialist when he states..  the radiologist says you are clear for another year. please help