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Preview: Online Breast Cancer Forum: Research Information & Resources

Online Breast Cancer Forum: Research Information & Resources

Our online breast cancer forum offers helpful information for cancer patients and their loved ones. Explore to research treatment methods and compare stories.

Published: Mon, 18 Dec 2017 00:00:00 GMT

Last Build Date: Mon, 18 Dec 2017 00:00:00 GMT



Sun, 17 Dec 2017 00:00:00 GMT

I am a breast cancer survivor ofnearly 17 years,recently l have noticed a tiny amount of blood from the nipple of the affected breast,l have an inverted nipple,always have had,anyone got advice?

Invisible Lump between left breast and armpit

Thu, 23 Aug 2012 00:00:00 GMT

i went to my doctor about a lumb the size of a nickle between my left breast and armpit.. when he felt it he immediately told me i was to go in for a mammogram w/dignostic... they called me with the appointment the next day - when i got there we did the mamo first which showed i discovered i have dense breast tissue as the whole view of the breast was white with very little contrasting black, after a few moments they took me back for an ultrasound - the tech picked up the nodes - which she said looked fine, then asked me about the lump, where it was located, what it felt like, etc. So i pointed it out and told her it seemed to be deep inside not just right under the skin and when i raise my arm - it goes further down. She felt it and was startled at the size, so she started trying to capture it - at one point she said got it - but then moved and it was lost - she brought in the radiologist who then felt the lump, looked puzzled and attempted to find it.. no luck - so i was sent home with an ALL CLEAR come back in a year and a pamplet on dense breast tissue. Is there a chance that this was not picked up on the ultrasound because it is hidden under the muscle? or just a phantom lump that can be felt not seen? no one seems to be worried but me. Since finding it, i am now having pains which shoot from the area of the lump into the breast and nipple area, over the last week i have started to feel extremely tired, edgy due to the pain just below my left shoulder blade and wraping around the left rib cage to just under my breast and as of today .. i have this nagging uncomfortable pain between the shoulder husband has even started asking me if i am ok inside. Am i just being paranoid - i do not wanna go for more tests and made to feel like i am being a hypochondriac. i cannot see a specialist unless my primary refers me - so how do i get him to send me to specialist when he states..  the radiologist says you are clear for another year. please help

Stinging in nipple and breast along with white nipple spot

Thu, 14 Dec 2017 00:00:00 GMT

6 months ago I was in the ER and got a chest ct scan which found a mass in my breast. I had actually known about the mass, but I am 27 years old and had it since a teen. A lot of friends have had similar masses and gotten them removed. Long story short, I got an ultrasound on it which the doctor said didn't look cancerous. However, I have had terrible pain and stinging in the breast with the mass. I have noticed a small white spot and I have no idea how to explain it but it really hurts. Here are links to the images. I honestly cant find ANYTHING like this on the internet, my nipple likes "normal" besides this - maybe slightly dry but thats it. Any thoughts would be really appreciated!

Need advice on breast surgery!

Wed, 13 Dec 2017 00:00:00 GMT

I have been diagnosed with breast cancer 7 years ago. I had undergone mastectomy surgery two years ago. Currently, I'm under complete remission of cancer. I'm happy with the result. My oncologist said that I have been strong throughout the whole procedure. He advised me to take proper rest for a while. Last day, I went for a shopping with my mom and everyone was staring at my boobs. It's very obvious that I had breast cancer. I hate the stares. I have heard that people who had breast cancer consider breast implant to regain the boobs. One of my cousins suggested undergoing saline breast implants from a clinic in London, Ontario ( ). But I have heard that a rare type of cancer is linked to breast implants. It's not similar to breast implants but it is known as lymphoma, which is the cancer of immune system. According to the latest survey, the number of women asking for breast implant removal has increased. Is that true? What might be the main cause of this lymphoma? I have just recovered from breast cancer and I don't want to take any risks. Is it safe to undergo breast implant procedure? How was your experience after the complete remission of cancer? Are you able to enjoy your life like others? Any advice is highly appreciated. Thanks!  

new calcifications on screening mammogram

Tue, 12 Dec 2017 00:00:00 GMT

I'm 42 and have had 2 normal mammograms in the past. However, last week I had my 3rd mammogram and received this finding, "There are calcifications with regional distribution seen in the posterior upper outer quadrant of the right breast." From what I've read, regional distribution is most likely benign, but I've seen a couple websites quote 20% and 26% chance of malignancy. I'm trying to find a document that gives the chance of malignancy for NEW calcifications. These were not there last year, which has me very concerned that I'm in that 20-26%. Thanks in advanced.

Titanium Clip and Breast Pain

Thu, 04 Sep 2014 00:00:00 GMT

I had a core needle biopsy in June. My breast, where the neoplasm was located and where they left the titanium clip is so sore and getting more sore by the day. This is kind of freaking me out: is my body rejecting the clip? Or, is it breast cancer? I am scheduled for a follow up ultrasound in two weeks, they have to wait till the tissue from the core needle biopsy is completely healed, they wanted to do an mri but as I've posted here before I am balking at that. So, my question: has anyone here that has had a core needle biopsy experienced pain from the titanium clip they leave behind? Like months after the biopsy....   Valarie

Invasive lobular carcinoma diagnosis yesterday. Terrified

Fri, 08 Dec 2017 00:00:00 GMT

Hi, I'm 38 years old. My husband found something that felt weird in my left breast and I went last week and had a mammogram and ultrasound. The dr ordered a biopsy for the following Monday. I was already scheduled for a hysterectomy this past Tuesday which went well! My Dr called me yesterday and gave me biopsy results. Invasive lobular carcinoma. Sounds like an alien invader. I'm just trying to get answers. I meet with surgeon in one week. Wow. This is going to be a long week. Especially since I'm stuck at home recovering from the hysterectomy! Any advice or knowledge would be greatly appreciated :) Thanks, Steph Kemp

stereotactic or conventional radiation??

Wed, 06 Dec 2017 00:00:00 GMT

I haven't started treatment yet and am confused as to the different types of radiation and am asking you experts out there this question: If you had an old (seven years ago) stage one, grade one, 199% ER+ breast cancer (IDC) return and hide in your sternum... and knew the therapy was going to be hormone blockers and radiation...would you insist on one type of radiation as opposed to another?  If so, can you say why?   I've not yet started my treatments.  This is Tuesday.  On Friday I start.  Tomorrow I meet with the oncologist for a consult.  I'm not sure he will tell me the best type of rad to use as I know here in Victoria, BC, they do not have a sterotactic type of machine.  They do in Vancouver though and I can request to be sent over there.  I don't want to make anyone annoyed with me.  Everyone has made things happen so quickly for me so I'm aware that I may get someone annoyed if I say "no thanks" to something they suggest.   Am I making any sense?  Yikes. Thanks.


Wed, 06 Dec 2017 00:00:00 GMT

New to this site. I was searching for any help with those like myself who are on Arimidex. I am in the 2nd battle with breast cancer, having had a second mastectomy on 12/6/2017. First BC was in 2006 and was not put on any inhibitors, as I was hormone receptive tripple negative. This new BC is hormone receptive positive. I too am experiencing bone aches, mostly in my knees, shoulders and jaw bone. I have a bone density test this week, and I'm hopeful I can remain on this drug. It's a struggle for sure ladies, so try if you can to hang in there. My doctor says it can take a few months before your body tollerates this. I will keep you all posted.  Blessing To All 

RE: invasive ductal carcinoma

Wed, 29 Nov 2017 00:00:00 GMT

I'd like to here others journeys with the same kind of breastfeeding cancer. If you could please share with me it would help. Thanks

leg and knee pain during chemo

Wed, 19 Jan 2011 00:00:00 GMT

Anyone experiencing leg and knee pain during chemo?  Everynight my legs and knees ache so bad I end up on the heating pad.  It seems to be getting worse.  Just wondering if it was the chemo.  The docs always answers my questions with "chemo effects everyone differently".  So, is that a yes or a no...just wondering.

Scared!! Need inspiration

Thu, 19 Oct 2017 00:00:00 GMT

  Found a lump and dimple last week in my right breast. I’m 32 with no family history and no risk factors other than being a bit overweight. Gyn sent me for mammo and US yesterday and things did not go well. Had My Mammo then U/S and afterwards the Radiologist came in and her exact words were “ I don’t like what I see” She sees a solid mass with 1 lymph node involved. The borders seem irregular. She wants a biopsy. I will have that tomorrow at 10 am and will know the results on Monday. I did ask the bi-rad score and it was a 5. So I know from reading that means it’s 95% mailgnant. I didn’t get a copy of the report but asked my gyn when called today how big it was and she said 2.7 X 1.3 X 2.1 CM--- That seems huge to me. I am scared to death. I’m only 32 with 2 small kids…. SO SO scared  

The waiting game

Thu, 31 Aug 2017 00:00:00 GMT

I am 40 years old and on my 2nd mammogram in my life they found something and said I needed to come back for another mammogram. The lady taking the pics would not say what she thought it may be. A week later received a phone call that the mammogram had shown that I need to go see a surgeon for a second option. When I went to see the surgeon is when I found out I have a small cluster of very small microcalcifications . He said they are almost always begnign, but a small percentage it was the early stages of breast cancer and he recommended me having a biopsy immmediatley. So he never leaned one way or another on if he thought it was cancerous or not. Had the biopsy yesterday and now have to wait til next Thursday to find out the results.. anyone have any ideas if I should be worried?

Living in Fear . Here is my Plan when My Cancer Recurs

Fri, 27 Oct 2017 00:00:00 GMT

Background: 6 years ago, at age 40, I went for my first ever mammogram to learn that I have Breast Cancer . I quickly had a lumpectomy followed by 7 weeks of radiation (did not have time to think or feel really, was all rushed!). I’ve had a lot of reactions from the radiation as the years have gone by. Too many to list. But I just deal with them as they come.   I am luckily in remission now, but frequently wonder what would happen if my breast cancer was to come back- what would I do?   So, what is My Plan when it Recurs?  I have done a lot of research and have found out a lot of information I wish I had known 6 years ago. In short, I would take a more personalized approach to my cancer, and here is here is my plan: First, since tissue is required to personalize a treatment, I would store my tumor tissue. No one knows that once you have your tumor taken out, it is not preserved in a manner to keep the cells alive.  For that, I would call  Second, I would do a genetic test to narrow down the list of drugs that may work on my tumor, and in parallel do a sensitivity assay that tests which drug, experimental drug or combination works best on my tumor.  The results from these tests will help my oncologists pick the right drug or combination that we know has a higher chance of working on my tumor.For Genetic Testing, see OncoDNA, FoundationOne, Caris and the likes… for Chemo Sensitivity, see Therapy Select, Rational Therapeutics, Mitra Biotech and the likes… Third, I would seek immunotherapy. There are different kinds, but from what I read, cellular treatment option (vaccines and T-Cell treatments) have promising results and little side effects.  They are experimental, but available in different countries.   The idea behind them is to use elements in my tumor to activate my immune system to fight my cancer. Immunotherapy minimizes the chance of relapse. ** apparently this is one of the best tools to stay in remission longer, and to get rid of “residual cancer cells in the body that are always the cause of recurrence” **For immunotherapy, see Unifontis, IOZK, Ventus, and the likes…In this day and age there is no reason to settle for standard of care when there are better or supplementary options out there. I want to find all these options and be ready!   Ladies, what else is out there? What else should I research?   96 Normal 0 false false false EN-US JA X-NONE

is mastectomy a good choice at 90

Thu, 23 Nov 2017 00:00:00 GMT

My 90 year old mother in law has 2 cancers (B1 grades 2 and 3) in her left breast not measuring more than 1 cm across each.  Her choices are removal, radiotherapy or do nothing. (She also has mild dementia, has been diagnosed this year as a high stroke risk, had a heart attack three years ago but fully recovered now, broke her hip two years ago but is also fully recovered from this)    If we do nothing the cancers could grow outside the body and get ulcerated, smelly etc...  BUT she may die of other causes before the cancer becomes too much to deal with.  Surely the cancer would grow very slowly at her age?   If we remove the breast then it could be too much for her body to cope with (although the anaesthetist has said she is frail but fit enough for the op).  My Mother also has mild dementia so she may awaken each day after the op distressed and not entirely remembering why she has lost her breast.   If we do radiotherapy the cancer may return in a year or so and this time the anaesthetist may say she is too old to operate.   At the end of the day her quality of life and comfort are our main concerns.  What should we do for the best?   Any advice would be much appreciated.

All Over Pain

Mon, 07 Jun 2004 00:00:00 GMT

I am now a 5 year survivor of inflammatory breast cancer 3rd stage, I had a double mastectomy to aid in my chances of survivoral along with two phases of chemotherapy, which one of the side effects was neuropathy in both hands and feet for about four months, then that subsided, and the I had nine weeks if radiation then three month latter reconstruction, all seemed well them I developed lymphedema in my right arm, which is a daily thing to deal with, but my bigest concern is that for the past year I experiance daily pain through out my whole body and if I do anything outside of my normal day i am in bed the next day with the pain so bad, I just when though a CT scan in January which came back clear of any cancer, But Doctors not sure why I have the pain that I do. Also a form of the neuropathy has returns in both hands. Does any one out there know of or anyone who has this type of problem. Carolin

Decided not to take Arimidex & Oncologist not happy

Sat, 28 Oct 2017 00:00:00 GMT

After my lumpectomy in May, 2017 and 2 re-exision surgeries, plust 21 radiation treatments, I decided that since my margins were clear, and no lymph nodes were positive, Stage 1 grade 2, er pos, pr pos, and her2neg, that I really don't want to risk the horrible side effects of putting anymore drugs into my body.  I had an unpleasant with the oncologist who prescribed it to me.  He thought I was not being fair by not taking it. I am so confused.  Can anyone share their experiences with the Arimidex?  I would truly appreciate any advice.

2 years after chemo, my hair has not grown back

Sat, 26 Apr 2008 00:00:00 GMT

I was diagnosed with breast cancer in February 2006, I began chemo (doxorubican, 5FU and taxotere) in March 2006 and had my last treatment in July 2006.  I only have a few sparse hairs on my head and my hair has not regrown.  I don't understand this since I had very very thick curly hair.  I have used Nioxin and am now using Rogaine in an attempt to get hair.  My body hair, eyebrows and eyelashes only have sparse hair also.  Do you have any suggestions or help?I miss my hair. Please help.


Fri, 17 Nov 2017 00:00:00 GMT

Pt scan shows  tahat there is physdg uptake in GI & Gu. Had lymphoma 5 years ago in lung. Endo showed ulcer and biopsie shows retuen in stomach.

Side Effects of Arimidex After Almost 2 Years

Wed, 17 Aug 2005 00:00:00 GMT

I'm new to this site but maybe this will be of interest to someone. I have been on Arimidex for almost 2 years now, having had a mastectomy in November 2003. Firstly I had hardly any side effects and slowly but surely they seem to be building up, some days far worse than the next. I have never had nausea though, thank goodness. The main side effects which I am experiencing now are aching bones and joints, mainly while trying to sleep at night. Also tiredness and seem to want to just go to bed to rest from as early as 8 in the evening - this is sad as I always went to bed late before my breast cancer. I also contemplated coming off the drug but decided that as the cancer hasn't come back at all in almost 2 years then perhaps I am doing the right thing in taking it every day.

Arimidex - should I take it?

Wed, 23 Aug 2017 00:00:00 GMT

I am a newbie.  I have recently had a second mastectomy, the first being 17 years ago.  I had a breast reconstruction on the remaining breast in February this year.  The tissue that was removed contained a DCIS so I opted to have a mastectomy. The tissue from the mastectomy contained a 7mm cancer.  I have been recommended to have Arimidex for a max. of 10 years.  I took Tamoxifen 17 years ago and couldnt tolerate it after 2 years.  I have read about the side effects of Arimidex and feel like it is all going to happen again.  I already suffer long term affects from Tamoxifen and Arimidex seems marginally less destructive but some of the comments I have read on this site make me seriously question whether I want to put myself through this again.  Is there anyone out there who declined hormone blocking treatment and is still going strong?

Invasive Metaplastic Carcinoma breast cancer

Wed, 12 Feb 2014 00:00:00 GMT

hello, my sister has been diagnosed a month and half ago with metaplastic breast cancer triple negative, the tumor size was around 9.8cm, after couple of tests such as CT scan, Bone scan, PET CT scan, they found out that cancer has not been spreaded to other parts of the body, the size of the breast is becoming now the tripple, the skin color and the nipple are becoming red, purple. they have started 1st session of chemotherapy, they are giving her taxol 120ml for 12 weeks, in order to shrink the tumor and then do the surgery of removing the whole breast, doctors are saying about this tumor that is might not respond to this chemotherapy and surgery cant be done at this stage as the breast is enlarged and they cant take out a cleam margin. if anyone has any experience of such kind of cancer please let me know.   thank you

Nerve Pain in shoulder running down arm

Mon, 06 Nov 2017 00:00:00 GMT

My wife completed 33 radiation treatments and 5 "shrinking" treatments and three weeks later developed terrible nerve pain in her shoulder radiating down her arm into her fingers. The Oncology Doctor said it was from holding her arm over her head during the treatments but after a visit to the ER, the Doctor told us it appears that the nerve running thru her shoulder was burned by the radiation and is causing her pain. He prescribed Neurontin and Percocet but they don't seem to be helping. She's sleeping less than 4 hours a night and in constant pain. I feel terrible for her but I hope there's someone else here that has gone thru this and can help. The cancer was removed along with eleven Nymph Nodes. Thank you for your time. Robert

back pain during and after chemo

Thu, 14 Aug 2008 00:00:00 GMT

I had back pain on one side and across my mid to lower back starting about half way through chemo, due, according to the doctors, to the pain that the combination of Taxol and Neulasta shots cause. It continues, in an abated, come and go way, ever since. I have done acupuncture and massage, but it still hangs on. Stretching and advil help. Drs say it is muscle pain, not a sign of cancer. Has anyone else had this lingering pain? I finished chemo in April.

My Wife left me after Breast Cancer

Wed, 13 Jun 2012 00:00:00 GMT

Well I am new to this discussion forum.  Most people I know are sick of listeneing to me about my life's turn of events.  My wife and I had been together since we were extremely young.  We had been together for twelve years married for five and in love.  She was twenty eight years old when she was diagnosed with Stage one Breast Cancer.  She had a lumpectamy chemo/radiation.  It wasn't easy for either of us.  After everything I noticed a change in her personality, then one day I came home from work after an argument to find that he had left me.  She will not see me or speak to me just random texts bringing up past arguments or mistakes I had made years ago.  She says her eyes were opened from her experience and she is no longer in love with me.  She refuses couceling and demands that I take the action of filing for a dissolution.  I really don't know what to say... Anybody out there that can help a guy get his head around this...   Sincerely Mr. Confused